Richmond & Kingston ME Group 2014 survey results

[Tom Kindlon]

(The results came out on March 31, 2015)
http://bit.ly/1GuLHci i.e.
http://www.richmondandkingstonmegroup.org.uk/news/march-2015-richmond-kingsto/

In 2009 the Richmond & Kingston ME Group commissioned Simply Research to conduct a local area survey with generous support from Grassroots Grants in order to assess its members on a range of topics including demographics, health status, welfare and benefits and a short evaluation of the Group’s activities and services. Following funding applications made by the Group in 2013 and 2014, grants were secured for a follow-up survey from Richmond Parish Lands Charity, the Royal Borough of Kingston and Skipton Building Society. Therefore, in early 2014 the Group approached Simply Research once again to provide the present report. Initially, this was to be comprised of the original quantitative items from the 2009 survey but after discussion by the Group's Committee it was decided that new information was required.

Therefore, comparisons to the 2009 results made within this report are limited to the items repeated in 2014.
The following links show the contents of the Survey.

Survey Report 2014
Survey Questionnaire 2014
Survey Report 2009

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Tom adds:

In case anyone wants to share any of them, to show the problems that exist for people with ME, I've posted some of the bar charts with accompanying text to:

(i) my Facebook page https://www.facebook.com/tom.kindlonpwme

(ii) my Twitter account: https://twitter.com/TomKindlon

 

[alex3619]

What is surprising is that severe plus very severe are over half. The severe is bigger than moderate. Interesting. How is that accounted for I wonder? The question is about how they were at their worst though. This is compared with the data at their best, in which the more severe were a minority. I wonder if the general perception of severe in the community at about 25% reflects a dynamic average?