Reputable online pharmacy UK - Cheap Rifaximin?

[Hip]

In house pahramcy say you need to send them your prescription - its ok as I do have one, but it could take a while to reach Vanuatu!

Hmm, asking for a prescription seems to be something new; I've been buying from inhousepharmacy for around 10 years, and they never previously required a prescription. No doubt this is due to pressure from the pharmaceutical industry (via their stooge organization, LegitScript), who are trying to make it difficult for the public to access cheaper drugs.

On this page, inhousepharmacy say you can fax, scan&email, or post the prescription.

 

[Gingergrrl]

@justy Sorry for my slow response on this one and hoping it works out with the on-line pharmacy.

The drug was inhaled Ciclesonide - it is 'only' a steroid inhaler so shouldn't have caused this reaction. But it could have been the propellant used, additives, or even the brand new areochamber device I was given to use it with (I did wash it first as instructed).

I am not familiar with that med and it is so hard to know what caused what with MCAS. I tried only one steroid by nebulizer to try to reduce inflammation in my lungs and it was a horrible experience. I have some others as emergency back-ups for MCAS reactions but thus far have not had to use them.

I often get myoclonic type jerks as part of my reactions. This seizure was continuous large arm and leg jerks for half an hour with one side of my mouth being pulled tight down by a strong muscle contraction/spasm in my face. I was conscious but felt very strange - actually very very calm. I tried to speak but couldn't because my mouth was so distorted. After half an hour it stopped. then I felt confused and vague. the next two days the confusion and vagueness continued and I crashed badly and spent Saturday to Thursday in bed.

Wow, that sounds horrible and so sorry you went through that. I know you have had horrible experiences with GP's and specialists but can they do an EEG or try to figure out what is going on with the seizures?

Im doing ok with food now - not having any throat tightening no matter what I eat and my diet is no longer very restricted

That is awesome news! Do you know what changed?

I now no longer every try a new med or supplement unless someone is home -

Me, too, and I also do not eat any food except water unless someone else is home. It's horribly restricting but necessary for safety at this time.

but this is causing a nightmare as I only have one day a week when my husband is home now and dont want to use the children for experimenting with drugs.

Can you try a med with one of your adult children around if they know the emergency protocol or does that feel like too much to ask? My dtr is only 13 so would never do this but if she were in her 20's, I would probably consider asking her.

Then I don't want to try lots of things in one go! have a list as long as my arm from my Dr that I need to start but it is taking forever! -

This, I agree with 100% and think is crucial and with MCAS if you try more than one thing at once, you will never know what caused the reaction (good or bad.) I am making a lot of changes to my mold detox program and doing one at a time (even for a dose change of a med that I already know I tolerate) and even with binders as simple as oats or a prebiotic like potato starch. It is moving at a snail's pace but if I did it all at once and had a horrible reaction, I would not know which item to blame.

I COULD TRY THINGS IN THE EVENING, BUT AS WE LIVE IN A REMOTE RURAL AREA I DONT FANCY MY CHANCES WITH (OOps sorry not shouting) getting to hospital in the cold, dark, icy weather.

Agree on this, too, and the thought of going to the hospital at night is a nightmare and I do not live in a rural area.

I have an Epipen but really wouldn't use it unless I was not able to breathe.

Agreed.

Have you seen the blog 'collagen behaving badly'? the woman has MCAS, EDS and M.E (like me) and she talks about seizure like reactions to drugs - she says it could be an H3 reaction - central nervous system - and their are no drugs to control it.

Yes, that is one of the blogs that I subscribe to even though I do not have EDS. I have not read the entire blog and did not realize that she has had seizures like reactions to drugs. As fas as I know there are only H1 and H2 blockers like you said. She has some very helpful info on MCAS and I compared her very detailed food list to the SIGHI list although many of the UK foods and Swiss foods are either not in the US or have different names. Do you subscribe to mastattack.org?

I have a tooth filling booked in for two weeks time and two invasive tests in the hospital over the next month or so and now really more worried about it - if I start having a seizure with loads of stuff in my mouth that cant be removed quickly and easily or start seizing and jerking with a camera up my butt it will not be good!

Eek! Can you postpone or are they urgent to do right away? There is a list to bring to doctors or the ER from TMS for a cure that can be very helpful for procedures like this. So far, since my MCAS exploded onto the scene in March/ April, I have not done any procedures like those but know at some point I will have to. Here is the link and hopefully it works: http://www.tmsforacure.org/documents/ER_Protocol.pdf

Keep us posted!

 

[PDXhausted]

@justy did you end up having any luck with the rifaximin justy?

I'm just starting on some myself for suspected sibo...

 

[justy]

@justy did you end up having any luck with the rifaximin justy?

I'm just starting on some myself for suspected sibo...

I bought some from inhousepharmacy - they were quite quick and the cheapes I could find - rcifax - although they came just in the blister packs with an elastic band around - no boxes

I haven't started them yet as they came last week and im going away for Christmas and don't want to spoil anything with a possible adverse or MCAS reaction. Going to start them as soon as I get back (3 month course).

 

[bertiedog]

@justy Just to let you know I have just finished a 10 day course of the Rimfaximin from inhousepharmacy together with 5gm guar gum daily. It has definitely helped some of my symptoms but it's difficult to know because I have picked up some gut bug which has caused a lot of pain and bloating.

I think I need longer than 10 days though. I took 400 mg every 8 hours. It was the easiest antibiotic I have ever taken. I did get headaches but I get those anyway and I did have some dizziness but I also get that too. Before getting this gut bug everything felt a lot calmer especially under my ribs. I am going to carry on now with Uva Ursi which is indicated on my recent stool test to kill off the potential pathogen I have Citrobactor but I am not at all sure that agrees with me because it can inhibit the steroid I take.

Nothing is easy but wanted to let you know not to be too worried about the Rimfaximin for me it was nothing like an ordinary antibiotic.

Pam

 

[PDXhausted]

@justy glad you got the meds ok good luck with it, hope it helps you.

I took my first dose and no problems or side effects. I actually just took half a pill to make sure I don't react first. I don't have MCAS, but tend to be very sensitive to meds.

 

[Kam]

I bought some from inhousepharmacy - they were quite quick and the cheapes I could find - rcifax - although they came just in the blister packs with an elastic band around - no boxes

I haven't started them yet as they came last week and im going away for Christmas and don't want to spoil anything with a possible adverse or MCAS reaction. Going to start them as soon as I get back (3 month course).

Hi Justy,

Just wanted to see if you have an update for us? I too, a looking for Rifaximin and am a little leery about ordering online and would love to hear your experience. I am in Hawaii so I assume it may take forever to ship, how long did it take for you to receive? Thanks in advance!

 

[justy]

Hi Justy,

Just wanted to see if you have an update for us? I too, a looking for Rifaximin and am a little leery about ordering online and would love to hear your experience. I am in Hawaii so I assume it may take forever to ship, how long did it take for you to receive? Thanks in advance!

it took about two weeks to arrive - no customs issues and so far seems ok - although how to really tell if the drug is top quality I don't know!

 

[Sushi]

although how to really tell if the drug is top quality I don't know!

Let is know how it goes. I got rifaximin from a Canadian pharmacy and the brand they stocked was made in India--it worked really well. I can't check my brand right now, but if you give the brand you got I'll check mine later and let you know if it was the same.

 

[Kam]

Thanks for your reply! Did you find the Rifaximin helped your symptoms?

 

[Sushi]

Did you find the Rifaximin helped your symptoms?

It helped enormously. Though I took it for a gut infection (which it resolved), it also cleared up my sinuses and ended migraines.

 

[justy]

Let is know how it goes. I got rifaximin from a Canadian pharmacy and the brand they stocked was made in India--it worked really well. I can't check my brand right now, but if you give the brand you got I'll check mine later and let you know if it was the same.

Thanks, mine was Rcifax - it came in foil packets, but no box or outer carton or info leaflet.

 

[justy]

Thanks for your reply! Did you find the Rifaximin helped your symptoms?

too early to tell as I am on a long course, pulsed. So far my bowel movements have lessened to one or two a day which is good!

 

[Kam]

It helped enormously. Though I took it for a gut infection (which it resolved), it also cleared up my sinuses and ended migraines.

So glad you are feeling better! I have some bacterial issues in my gut as well and after 3 weeks of nagging my insurance agreed to cover the Rifaximin so I wont have to go online but the response is helpful if I need another round as I am sure they wont cover a second one. I am going to try and get it today, any side effects, anyone?

 

[justy]

So glad you are feeling better! I have some bacterial issues in my gut as well and after 3 weeks of nagging my insurance agreed to cover the Rifaximin so I wont have to go online but the response is helpful if I need another round as I am sure they wont cover a second one. I am going to try and get it today, any side effects, anyone?

Yes I have had upper left stomach pain and a possible herxheimer reaction. I am Pulsing one week on, one week off for three months and the pain settles down when off for a couple of days. Other than that I feel generally worse all over - although my bowels are working better which is a plus!

 

[Kam]

Started my rifaximin yesterday. Think it gives me a bit of a headache, anyone else? Also wanted to ask if anyone is taking probiotics during their treatment?

 

[Kam]

Yes I have had upper left stomach pain and a possible herxheimer reaction. I am Pulsing one week on, one week off for three months and the pain settles down when off for a couple of days. Other than that I feel generally worse all over - although my bowels are working better which is a plus!

Yes as I mentioned I have a bit of a headache and nausea. Hopefully this will pass. I had herxheimer reaction taking antifungals for candia, no fun at all! Are you taking with or without food? I have heard conflicting info on both sides. With my condition lately I seem to be throwing up a little every time I eat so I am afraid to take it with food, I do not want to end up losing this expensive and hard to get treatment in the process.

Sorry to hear about your side effects, it drives me crazy every time I try to resolve one issue it causes another to arise. I have bad reactions to food and have been very limited, I found that eggs made me feel ok so I ate a lot of that and now my cholesterol is up 100 points! I had to cut out the ONE thing I could eat and not cause bacterial reactions. Sigh!

 

[justy]

@Kam yes am taking probiotics - I have MCAS so its been hard finding one I can take. I take custom probiotics D lactate free, its VERY expensive. Normally people take vivomixx or vsl#3, but these are no good if you have histamine issues.

good luck with the rif. Im feeling a lot worse since I started it, but it could be other factors at play for me too.

 

[Thinktank]

Which brand rifaximin are you guys taking?
My pharmacist just ordered original xifaxan for me at the ridiculous price of 351 euro for 56 tablets! No generic equivalent available.
I've to pay it myself as it's not "registered" in the Netherlands. Less and less medication is being covered, maybe i should stop paying for my health insurance as well!

Edit: Just found out my additional(?) health insurance covers 200 euro, so i have to co-pay 150 euro. Unless they try to get out of it by claiming KDM is an "alternative" doctor like they did when i claimed the costs for IV abx.

 

[justy]

Which brand rifaximin are you guys taking?
My pharmacist just ordered original xifaxan for me at the ridiculous price of 351 euro for 56 tablets! No generic equivalent available.
I've to pay it myself as it's not "registered" in the Netherlands. Less and less medication is being covered, maybe i should stop paying for my health insurance as well!

Rcifax - an Indian brand from inhousepharmacy.