Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS ...
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Relatively high functioning adults with CFS in Auckland New Zealand

Discussion in 'Active Clinical Studies' started by Cara Blanchard, Jul 6, 2016.

  1. Snow Leopard

    Snow Leopard Hibernating

    South Australia
    That may well be the case for those who are spontaneously recovering from CFS, but it is a leap to expect this to be the same for moderate (housebound) to severe (bedbound) patients. The fear is that this will lead to be yet more unrealistic prescriptions by doctors telling patients to exercise - and being personally blamed when they fail to do so. "But this study shows it's possible". Do you understand our concerns? By the way, such studies are meaningless unless they show long term benefit - eg continuing to exercise and maintain higher levels of activity 1-2 years after the intervention. From personal experience, most doctors don't even begin to think that the benefit of these sorts of trials may only be temporary and might not be able to be maintained...
    Hugo, aimossy, Jill and 5 others like this.
  2. panckage

    panckage Senior Member

    Vancouver, BC
    Hmm... so it looks like this is the interval training version of graded exercise therapy.
    @Cara Blanchard is everyone who participates in the study considered part of the case study? Or is the study just what will be used to pick the most appropriate subjects for the case study?
    Last edited: Jul 9, 2016
    Jill and Valentijn like this.

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