Recording from 12/13/2017 and 12/14/2017 CFSAC Meeting

Gemini

Gemini

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Wally said:
Recording of 12/13/2017 and 12/14/2017 CFSAC Meetings -
https://www.youtube.com/playlist?list=PLrl7E8KABz1ELEasMWqE4SqD2vHQjaCLD
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@Wally, thanks for posting.

Is there an index, or can we make one, that links the 11 videos to the agenda items?

Meeting highlights I'd like to go to directly-- Video # and Time on video:

Dr. Montoya's Adult Research Update
Dr. Vallings Pediatric Research Update
Patient organization presentations:
1. Simmaron Research
2. Massachusetts CFIDS/ME
3. MEACTION
Public Comments Day 1
Public Comments Day2
NIH Update
FDA Update
New "CFSAC Treatment/Clinical Trial Working Group"
 
W

Wally

Senior Member
Messages
1,167
@Gemini - I doubt that there is an index that CFSAC has for the recordings, but I like your idea of developing one.

I am not going to have much time to be on the computer until after the 25th, but I can try to work on this when I have some spare moments next week (unless you or someone else would like to take on this project).

I really like the idea of PR being a place where patients can come to get info. about what is going on related to this illness and that we help present information in a format that makes access to this information easier to find without require you to jump through a circus tent full of hoops.:eek:

Happy Holidays - here is too wishing and praying that 2018 will bring all of us much closer to answers and treatments for this illness.
 
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