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Rambler's Mold Avoidance Experiments

Discussion in 'Addressing Biotoxin, Chemical & Food Sensitivities' started by slayadragon, Mar 1, 2012.

  1. slayadragon

    slayadragon Senior Member

    Here is a blog by an ME/CFS patient from San Francisco (not me! someone else) who decided to try extreme mold avoidance. So far so good, it seems!

    Best, Lisa


    Here is a quick summary of the symptom changes I experienced in those 2 weeks:
    * no insomnia or nocturnal awakenings- slept through night every night (9 pm- 5 or 6 am)
    * less brain fog
    * clearer vision
    * more energy, especially in morning
    * less orthostatic intolerance
    * almost no tingling in hands and feet
    * no all-day tremulous feeling

    Some symptoms still persisted:
    * My brain wasn't 100%-- I still had problems with concentration
    * Continued to feel like I couldn't get a deep breath (i.e. air hunger)
    * Still had seemingly random waves of exhaustion (better than all-day exhaustion)
    * Didn't feel 100% physically, although I could hike without crashing
  2. searcher


    SF Bay Area
    I just stumbled upon this post by @slayadragon when I was looking at some analytics on my blog.
    I thought I would write a quick update on how mild mold avoidance has helped me 2 1/2 years later in case my experience will help someone considering it. Note: I have done extreme avoidance a few times for a total of a month or so but mostly have focused on living in healthy environments since then. I used to live in a moldy house in San Francisco and now live in a seemingly mold-free house in Hawaii.

    * I sleep through the night 90% of the time, although I often wake up earlier than I would prefer.
    * My brain fog is much improved, which I partially attribute to the change of environment (San Francisco->Hawaii) and partially to reishi.
    * My vision is hardly ever blurry anymore! I can't believe I used to try for years to read while the words were swimming on the page or screen.
    * My energy levels still fluctuate, but I can now leave the house without adderall most days, after four years of not being able to leave the house w/o stimulants.
    * I still spend most of my time lying down, but I don't notice obvious POTS symptoms when I am standing any more.
    * I very rarely have tingling in hands and feet.
    * I never have the all-day tremulous feeling, although I do sometimes have it for a few hours.

    * My brain is still not 100% due to the same problems with concentration. I can write more though.
    * Air hunger is still persisting :(
    * I have fewer random waves of exhaustion, although they still happen when I overdo it.
    * I can walk for miles without getting obvious PEM, but can't do much aerobic activity without paying.
    xena, cigana, Christopher and 2 others like this.
  3. Christopher

    Christopher Senior Member

    You haven't updated your blog in a while. Do you do the shower and change when you come in from outside sort of avoidance?
  4. searcher


    SF Bay Area
    Hi @Christopher- I've been spending a lot of time on HealClick and elsewhere so haven't had a chance to write a proper blog post for awhile. I have experimented with full-scale avoidance, but at this point I just do moderate avoidance. I have an outdoor shower though and do shower if I have been in an obviously bad building.
  5. Gondwanaland

    Gondwanaland Senior Member

    • salicylate sensitivity/high uric acid
    • ammonia
    • thyroid
    helped me with this maddening issue.
    searcher likes this.

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