International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Practical management of chronic fatigue syndrome or myalgic encephalomyelitis in childhood

Discussion in 'Latest ME/CFS Research' started by Kati, Jul 1, 2017.

  1. Sean

    Sean Senior Member

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    You obviously need a clean sweep.
     
  2. Karen Kirke

    Karen Kirke

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    For an alternative view, I hope that clinicians and parents of children and adolescents with ME/CFS (and indeed, the adolescents themselves) will come across this open access paediatric primer, which includes Peter Rowe, Rosamund Vallings and Nigel Speight as authors. It is is well-referenced, wide-ranging and very practical.

    http://journal.frontiersin.org/article/10.3389/fped.2017.00121/full

    (If someone has already linked to this primer in this thread and I haven't seen it, apologies!)
     
  3. TillyMoments

    TillyMoments

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    The link is broken and just comes up with the pic below http://adc.bmj.com/content/early/2017/06/27/archdischild-2016-310622.full This link you have to ask permission

    Have NICE decided to have ME as Unexplained Medical Symptoms? Countess Mar asked about FII with regards to children and they put the question as this?
    https://hansard.parliament.uk/lords...74766C636C/HealthMedicallyUnexplainedSymptoms
     

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  4. Valentijn

    Valentijn Senior Member

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    Luther Blissett and Snow Leopard like this.
  5. Dolphin

    Dolphin Senior Member

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    Small correction:
    They actually have it correct in terms of what NICE says:
     
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  6. AndyH

    AndyH

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    PEM with a delay in onset of at least 24 hours or more being the norm is a prerequisite symptom for a NICE diagnosis. Only at the three or four month period should they then look for whether all the symptoms have gone or not to confirm ME or otherwise.
     

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  7. RogerBlack

    RogerBlack Senior Member

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    I strongly recommend archive.org - and have donated.
    Plugging in the above URL to archive.org gives
    https://web.archive.org/web/*/http:...Chronic-fatigue-syndrome/Pages/Diagnosis.aspx

    The Febuary version explicitly repeats the NICE list.
    This version is probably significantly better than what's there now.

    The change was between Feb and july this year.
     
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  8. Dolphin

    Dolphin Senior Member

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    I thought this was interesting. I have rarely seen similar declarations in the ME/CFS literature.
     
  9. Dolphin

    Dolphin Senior Member

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    I have read this paper and agree it is terrible.
     
  10. John Mac

    John Mac Senior Member

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    Liverpool UK
  11. Dolphin

    Dolphin Senior Member

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    http://opus.bath.ac.uk/55202/1/ADC_...ronic_Fatigue_in_Childhood_Revision_clean.pdf
     
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