• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Partial Digeorge syndrome

wastwater

Senior Member
Messages
1,271
Location
uk
I think this maybe what I have,it can effect the thymus and t cells,I hope it is the answer I was looking for,I've had an immune workup for lupus,and it wasn't that,I'm not sure what tests would show problems here or if anything could be done for it,any recommendations,thanks
 

barbc56

Senior Member
Messages
3,657
From what I'm reading this is usually present at birth. Here's a link but I'm not sure if I'm reading it correctly. I had a link with better information but now I can't find it.

I would discuss this with your doctor. Not only would it be would be impossible to diagnose from one post but it's against the rules and for good reasons. None of us are doctors and if someone misdiagnosed you it could be harmful..

Good luck!

ETA Apologies if I came across as rather presumptuous, I thought you were a new member. I knew your avatar looked familiar! Facepalm!
 
Last edited: