Molly98
Senior Member
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- 576
I am the one who made the comment in the article and to which Steven Lubet replied to. and I used my full real name that is so rare there is only one of me in the world
i mentioned fraud because this is what it feels like. It was (still is) deceit, and they keep on covering up and pretending the emperor is still fully clothed.
When there is fraud, there are cheaters and there are victims. The cheaters should know better. They are university professors. They are physicians. They are supposed to be professionals whom society trust. You trust they were doing the right thing. But then upon examination of this trial, they didn't play by the books. They discarded or opted out of objective measurements. They changed entry criteria. They picked patients who didn't have CFS to start with. They let confidential records in an unlocked cabinets and these records were stolen. They told patients mid trial that CBT and GET were superior to other interventions through a newsletter. They voted themselves as experts for Cochrane reviews and since they are the authors of this 'magnificient'paper, confirmed that CBT and GET were the only and most effective treatments for CFS. They are now testing CBT and GET on children, for crying out loud. The very same group of physicians have refused to attend ME international conferences and debate their paper findings with our medical experts who see and research patients with ME on a daily basis. They continue their ideological warfare and refuse to admit any wrongdoings despite their own data, shared by court order, telling a very different story.
Steven Lubet may think that fraud was a strong word. After all, he is a law professor. I respect that. I doubted myself for writing such strong word using my full, rare name. But I have a right to my opinion. And from my experience, from astute detective work from @Tom Kindlon, David Tuller, Carolyn Wilshire, Alem Matthees and others, I have the opinion that it is fraud, and that millions of patients from around the world are victims of this fraud. We are all entitled to an opinion, and I will stand by what I said.
@Kati, you can not be accused of not knowing your stuff and you explain your reasons very well and I could not agree more with your opinion. Is fraud really such a strong word? or no go word? I don't think so, certainly not in this case. We are the victims of these peoples harmful and deceitful actions, we have every right to call it this.
You don't need to spend 1/4 of a million pounds desperately trying to stop data and information being released if you have nothing to hide. Nor do you need a smear campaign in the media against the very patients your research is on. There have been so many cover ups and so much political maneuvering. It certainly feels like one big con from where I am sitting.
Everything was very deliberately done to achieve the results that would justify their beliefs and treatments. They still didn't get the results they wanted so they changed the goal post.
Even then the results were pretty poor so they went on a media campaign to big them up used words such as cured and recovered and talked as though all ME patients could be cured by these treatments if they only tried and accepted them where even their conflated results showed no such thing.
Who have been the sole benefactors of this study? Them. Well perhaps also DWP and insurance companies.
Who has it affected adversely? Those of us with ME.
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