worldbackwards
Senior Member
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We're clearly split. It's definitive proof! That poll's pretty much an RCT. It's a thing of beauty...
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PACE trial data release: MEA website poll
- Thread starter charles shepherd
- Start date
Kati
Patient in training
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sarah darwins
Senior Member
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Come on, we know Lord Voldemort is smarter than that. I'm sure he's ordered the Death Eaters to vote 'yes' so he can then claim the poll is too good to be true and must have been rigged (even Saddam used to give the other guy a couple of per cent).
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charles shepherd
Senior Member
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This posting on MEA Facebook explains why we have a single no vote!
Charlie Willis Look sorry I voted wrong and clicked no to poll when I meant yes!!
Charlie Willis Look sorry I voted wrong and clicked no to poll when I meant yes!!
Esther12
Senior Member
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That's PWME for you.
That it was only one shows how committed people are to getting it right!
alex3619
Senior Member
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We cannot hold it against anyone. I click the wrong buttons on a regular basis, even in computer games I know well.That's PWME for you.
alex3619
Senior Member
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Still only 2 not sures, 866 votes.
worldbackwards
Senior Member
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John Mac
Senior Member
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- Liverpool UK
The yes vote has passed the 1,000 mark
- Should be released (100%, 1,014 Votes)
- Should not be released (0%, 1 Votes)
- Not sure (0%, 2 Votes)
- No opinion (0%, 0 Votes)
taniaaust1
Senior Member
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- Should be released (100%, 1,048 Votes)
- Should not be released (0%, 2 Votes)
- Not sure (0%, 3 Votes)
- No opinion (0%, 0 Votes)
............
how many were involved in doing that study? I guess we can expect to see that many vote for it not to be released.
641 patients were enrolled but why wouldn't they want their data released? It can't possibly identify them and if I'd risked my health in a clinical trial I'd want the best possible use made of my data in the interests of myself and other patients. That means data-sharing with other researchers, not letting the PACE authors hang onto it forever. I'd want to see the protocol-specified analyses done.
Any patient who has kept up about the issues will want the data released, IMO. And I think it's especially in the interests of the patients in the trial that that happens.
I think taniaaust1 was thinking of the number of investigators.
@taniaaust1, there were 19. Some of them are probably 'not sure'.
sarah darwins
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Years or research by journalists, and now mathematicians and profilers .... and they're STILL not sure who Banksy is: http://www.theguardian.com/artandde...maths-and-criminology-to-map-artists-identity
Makes you think some of the claims about patients being identified might be a tad exaggerated.
Makes you think some of the claims about patients being identified might be a tad exaggerated.
worldbackwards
Senior Member
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Hey, don't underestimate those crazy militant ME patient activists.
Could we have superhuman powers? Why not, the rest of it is all bollocks as well...
taniaaust1
Senior Member
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- Sth Australia
sorry I should of predicted someones brain wouldnt be working well enough to know what I meant and that I was refering to the researchers...
I'll try to remember to be clearer.