International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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(old research) Severe ME/CFS in Adults - A report from the CHROME Database

Discussion in 'Latest ME/CFS Research' started by RogerBlack, Jun 24, 2017.

  1. RogerBlack

    RogerBlack Senior Member

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    I found this interesting, as I had not heard of the CHROME dataset, and wonder if it is still worked on. This was a self-selected survey.
    http://iacfsme.org/ME-CFS-Primer-Education/Bulletins/2009/Severe-ME-CFS-in-Adults-A-report-from-the-CH-(1).aspx

    A followup attempt 20 years on could be very interesting, though of course problematic. A substantial number of patients will have died of natural causes, which could in itself be interesting.

    [​IMG]

    Dr Sneddon (if it is the same person) seems to have moved on to directing clinical research for a university/NHS project in Sheffield, and the other author last published on CFS in 2014. http://me-pedia.org/wiki/Derek_Pheby
     
    Last edited: Jun 24, 2017
  2. Snow Leopard

    Snow Leopard Hibernating

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    South Australia
    There is that bimodal age peak again!
     
    RogerBlack likes this.

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