Nursing Times: People with chronic fatigue 'lacking support', claims charity

[Little Bluestem]

The psycho CBT and GET centres ARE the "specialist centres" available in England, @Valentijln

I assume that is why half of the patients have had the sense to avoid them.

 

[maryb]

quote

“We know that there are many brilliant and supportive professionals working with people with ME/CFS out there"

its either that or cry.............

 

[Min]

The only brilliant and supportive professional I have met in nearly 30 years of severe M.E was hauled before the GMC and banned from working with ME patients for daring to treat our physical illness aa a physical illness.

 

[maryb]

Yes I was just talking about that person to a friend in an e-mail - she called the GMC bastards......I agreed

 

[Min]

Yes I was just talking about that person to a friend in an e-mail - she called the GMC bastards......I agreed

The good doctor came far too near to uncovering the cause of myalgic encephalomyelitis for the GMC's comfort, and so was silenced and stopped.

 

[Firestormm]

Do you care about ME?

AfME Awareness video launched alongside the above survey: http://forums.phoenixrising.me/index.php?threads/action-for-me-video-do-you-care-about-me.30254/

 

[maryb]

The good doctor came far too near to uncovering the cause of myalgic encephalomyelitis for the GMC's comfort, and so was silenced and stopped.

Sorry to go off thread but the issue of blood culturing is something that's been on my mind over the past 2 weeks, now that doctor did this, if only the NHS would do something like a 7 day blood culture on ME patients, be interesting to see what they'd find, you could actually call that research!!!