Northern Ireland neurologist(Dr Watt) under investigation

[Abha]

I'm sure many ME/CFS patients here at some stage were seen by Dr Watt.I was referred to see him in 2010(March?).He spent his time with me reading through my notes(came unprepared?).....kept saying I had done well.

At that stage I had hoped to get to see the Mitochondrial specialists in Newcatle(UK mainland).Dr Watt didn't send me for any more testing etc...and he stated in his report that he didn't require to see me again.Just before I left his clinic at the RVH(Royal Victoria Hospital/Belfast) he told me to get back to playing sports/swimming etc.

As I have bad PEM etc(finding it hard to walk or do anything) I told him he must be joking!I have all the ME/CFS symptoms...Eventually in 2014 I learned about Hypopituitarism/PTHP.....see Joanna Lane's book...."Mother of a suicide"(my case study is there...A brief account).

I first attended the RVH(Royal Victoria Hospital) in 2005(Dr Mc Cluskey's Clinic/He was reported later too, by another doctor....and eventually resigned after GMC intervention around 2013?)

The ME/CFS patients in Northern Ireland have had a terrible time under such specialists....as I'm sure many will agree.I diagnosed my own parathyroid disease and the hypopituitarism too but, of course had to have these parts of my illness confirmed by NHS specialists.I had to travel to England at my own expense (with limited funds) to see specialists that i required.

Here are some links re yesterdays news concerning Dr Watt.

Belfast Trust recalls 2,500 neurology patients following review of consultant's work

https://www.irishnews.com/news/nort...lead-to-probe-into-consultant-s-work-1317754/

Trust recalls 2,500 patients over treatment fears

http://www.bbc.co.uk/news/uk-northern-ireland-43955732

 

[denlander]

I'm sure many ME/CFS patients here at some stage were seen by Dr Watt.I was referred to see him in 2010(March?).He spent his time with me reading through my notes(came unprepared?).....kept saying I had done well.

At that stage I had hoped to get to see the Mitochondrial specialists in Newcatle(UK mainland).Dr Watt didn't send me for any more testing etc...and he stated in his report that he didn't require to see me again.Just before I left his clinic at the RVH(Royal Victoria Hospital/Belfast) he told me to get back to playing sports/swimming etc.

As I have bad PEM etc(finding it hard to walk or do anything) I told him he must be joking!I have all the ME/CFS symptoms...Eventually in 2014 I learned about Hypopituitarism/PTHP.....see Joanna Lane's book...."Mother of a suicide"(my case study is there...A brief account).

I first attended the RVH(Royal Victoria Hospital) in 2005(Dr Mc Cluskey's Clinic/He was reported later too, by another doctor....and eventually resigned after GMC intervention around 2013?)

The ME/CFS patients in Northern Ireland have had a terrible time under such specialists....as I'm sure many will agree.I diagnosed my own parathyroid disease and the hypopituitarism too but, of course had to have these parts of my illness confirmed by NHS specialists.I had to travel to England at my own expense (with limited funds) to see specialists that i required.

Here are some links re yesterdays news concerning Dr Watt.

Belfast Trust recalls 2,500 neurology patients following review of consultant's work

https://www.irishnews.com/news/nort...lead-to-probe-into-consultant-s-work-1317754/

Trust recalls 2,500 patients over treatment fears

http://www.bbc.co.uk/news/uk-northern-ireland-43955732

As a Belfast native now practicing in New York with an interest in ME CFS I am saddened by this news. However ME CFS has been "overlooked" by the Ulster authorities for many years, I seem to remember patients were referred to an ME CFS center at the City Hospital . The ME CFS center was at the top of two steep flights of stairs, Maybe it was a PEM test!! Of course their prescribed treatment was the PACE protocol, GET and CBT. During one of my annual ME CFS visits to Belfast and Dublin I appeared on Ulster TV complaining about the prevailing attitudes.
Lately, I was given a million dollar research grant at Mount Sinai School or Medicine, New York. This resulted in a defamatory lawsuit claiming money and claiming that my late wife who died 12 years ago sexually abused an employee in New York and then they sued me, totally fabricated . The lawsuit was settled and did not go to court. Meanwhile the Belfast Telegraph had a field day portraying an ex-Belfast doctor interested in ME CFS
Derek Enlander MD

 

[gregh286]

I'm sure many ME/CFS patients here at some stage were seen by Dr Watt.I was referred to see him in 2010(March?).He spent his time with me reading through my notes(came unprepared?).....kept saying I had done well.

At that stage I had hoped to get to see the Mitochondrial specialists in Newcatle(UK mainland).Dr Watt didn't send me for any more testing etc...and he stated in his report that he didn't require to see me again.Just before I left his clinic at the RVH(Royal Victoria Hospital/Belfast) he told me to get back to playing sports/swimming etc.

As I have bad PEM etc(finding it hard to walk or do anything) I told him he must be joking!I have all the ME/CFS symptoms...Eventually in 2014 I learned about Hypopituitarism/PTHP.....see Joanna Lane's book...."Mother of a suicide"(my case study is there...A brief account).

I first attended the RVH(Royal Victoria Hospital) in 2005(Dr Mc Cluskey's Clinic/He was reported later too, by another doctor....and eventually resigned after GMC intervention around 2013?)

The ME/CFS patients in Northern Ireland have had a terrible time under such specialists....as I'm sure many will agree.I diagnosed my own parathyroid disease and the hypopituitarism too but, of course had to have these parts of my illness confirmed by NHS specialists.I had to travel to England at my own expense (with limited funds) to see specialists that i required.

Here are some links re yesterdays news concerning Dr Watt.

Belfast Trust recalls 2,500 neurology patients following review of consultant's work

https://www.irishnews.com/news/nort...lead-to-probe-into-consultant-s-work-1317754/

Trust recalls 2,500 patients over treatment fears

http://www.bbc.co.uk/news/uk-northern-ireland-43955732

Never went to RVH.....but the name rings a bell for other NI CFSers in past.

 

[Abha]

As a Belfast native now practicing in New York with an interest in ME CFS I am saddened by this news. However ME CFS has been "overlooked" by the Ulster authorities for many years, I seem to remember patients were referred to an ME CFS center at the City Hospital . The ME CFS center was at the top of two steep flights of stairs, Maybe it was a PEM test!! Of course their prescribed treatment was the PACE protocol, GET and CBT. During one of my annual ME CFS visits to Belfast and Dublin I appeared on Ulster TV complaining about the prevailing attitudes.
Lately, I was given a million dollar research grant at Mount Sinai School or Medicine, New York. This resulted in a defamatory lawsuit claiming money and claiming that my late wife who died 12 years ago sexually abused an employee in New York and then they sued me, totally fabricated . The lawsuit was settled and did not go to court. Meanwhile the Belfast Telegraph had a field day portraying an ex-Belfast doctor interested in ME CFS
Derek Enlander MD

Dr.Enlander sorry to hear about your wife's death,the lawsuit and your appalling treatment by the Belfast Telegraph.I never read the local newspapers so I missed that story.
It was great to hear an authority on ME/CFS like yourself speak about the illness(ME/CFS) in the Lansdowne Hotel back around 2012.It was a great pity that few doctors or consultants attended that event.From time to time I have read that you continue to see your patients on these shores.

Since 2012 my GP has twice tried to get me appointments(after I had gone to the Ombudsman) at the RVH/Belfast but on each occasion the consultant immunologists there have refused to see me.On the first occasion he stated there was an 80 week waiting list....and that chronic fatigue was not a specific immunological condition.

In 2017 the lady consultant endocrinologist stated I had been fully investigated(that was back in 2005/6.....many things missed including Hypothyroidism treatment/pernicious anaemia/autoimmune gastritis and most alarmingly hypopituitarism/PTHP).That consultant was under investigation for his work with 59 patients...reported by a doctor...He resigned in 2013 when under GMC investigation(as far as I understand it)..She also said chronic fatigue was not a specific immunological condition.

There is no functioning Government here....no Health Minister.....and no Governance of the top medical staff(consultants )...I'm a brain damaged patient.....and I have many medical problems.....especially gut/brain....inflammation of the brain?Anyone in NI who gets the diagnosis of ME/CFS is forgotten about.....and unfortunately a Health system that promised so much for ME/CFS patients back in 1988(Belfast Telegraph article featuring Dr Mc Cluskey on his work with ME/CFS.) has not delivered and the outlook is bleak!

 

[denlander]

The work at the ME CFS centre at Mount Sinai New York Continues, we believe thatME CFS is an immune system dysfunction. The late Rich van Konynenburg spoke at a conference which I chaired and related some of the immune system methylation cycle abnormalities. We developed a supplement protocol to help patients.

We are also in the throes of publishing a manuscript refuting the exercise protocol of the PACE study, some of our patients went into relapse after the PACE protocol.
regards to all
denlander@aol.com

 

[Abha]

The work at the ME CFS centre at Mount Sinai New York Continues, we believe thatME CFS is an immune system dysfunction. The late Rich van Konynenburg spoke at a conference which I chaired and related some of the immune system methylation cycle abnormalities. We developed a supplement protocol to help patients.

We are also in the throes of publishing a manuscript refuting the exercise protocol of the PACE study, some of our patients went into relapse after the PACE protocol.
regards to all
denlander@aol.com

Dr Enlander I would like to know your opinion re ME/CFS diagnosis/treatment of patients.....Is this the job of the immunologist or whose job should it be?I'm very confused re this.