• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

NICE: "We are looking for lay members to join the ME/ CFS guideline committee."

R

RogerBlack

Senior Member
Messages
902
From here
Closing date: 5pm, Thursday 26 July 2018.

Time commitment: 2 years.

We are looking for:
People who have an understanding of ME/CFS and the issues important to people with ME/CFS. This understanding could have been gained:

  • through personal experience of treatment and care provided for you by the NHS or social care services
  • as a parent or carer of someone with ME/CFS
  • as a volunteer or employee of a relevant voluntary organisation or support group.
Applications are especially welcome from people with ME/CFS (age 16+) from across the range of illness severities, and from parents/carers of people with ME/CFS.
Click to expand...

Expenses may be covered, and the details of the role are above.
 
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