Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
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New PACE paper, more SMC spin.

Discussion in 'Latest ME/CFS Research' started by Esther12, Jan 13, 2015.

  1. jimells

    jimells Senior Member

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    "... whom we know are mostly just stenographers hanging onto our every word..."

    Move along, folks, nothing to see here except propaganda...
     
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  2. jimells

    jimells Senior Member

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    It's probably just a coincidence, but 2002 is the same year that responsibility for this illness was moved from an NIH institute (I forget which one) to the Office of Research on Women's Health. It's also the same year the CFS Centers of Excellence (or whatever they called them) were shut down.

    2002. It was a very bad year, apparently.
     
  3. jimells

    jimells Senior Member

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    Thanks for the link to the Science article. It's clear to me that the SMC is an industry front. After the US is infected by one of these, will our illness be their first project?
     
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  4. Dolphin

    Dolphin Senior Member

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    A response from:

    has gone up:
    http://www.bmj.com/content/350/bmj.h227/rr-3

    She said
    should read
    She believes it was edited (it was slow to go up).
     
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  5. Bob

    Bob

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    Response to Lancet article from Prof. Betsy Keller, Ph.D., Ithaca College
    Jan 24, 2015
    https://theothersideofthestretcher....e-from-prof-betsy-keller-ph-d-ithaca-college/

    Some Extracts:
     
    Last edited: Jan 25, 2015
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  6. Sean

    Sean Senior Member

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    Not to mention ethically disgraceful.
     
  7. Sean

    Sean Senior Member

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  8. Sasha

    Sasha Fine, thank you

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    Here's an opportunity for somebody:

    https://www.facebook.com/permalink.php?story_fbid=824260817631578&id=171411469583186

     
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  9. Sasha

    Sasha Fine, thank you

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  10. Daisymay

    Daisymay Senior Member

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  11. Nielk

    Nielk

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  12. Wildcat

    Wildcat

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    .
    Trudie Chalder has just made a response in the BMJ Rapid Responses on 'Tackling fears about exercise':
    http://www.bmj.com/content/350/bmj.h227/rapid-responses
    .
    29 January 2015
    Trudie Chalder
    Professor
    Kimberley Goldsmith, Peter White, Michael Sharpe, Andrew Pickles
    King's College London
    .
     
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  13. Bob

    Bob

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    Well, reading the responses to that should be fun!

    I wonder why they bothered responding, esp with such a bog-standard letter. It would be nice to think that the BMJ invited them to respond because they are planning to publish some of the posts, but I'd be surprised if that was the case.
     
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  14. chipmunk1

    chipmunk1 Senior Member

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    T.C:

    what i said before.. they just use the concept of deconditioning and fear avoidance of low back pain(completely unrelated illness if you ignore that some believe both are due to somatisation) and apply it to ME

    [​IMG]

    http://en.wikipedia.org/wiki/Fear-avoidance_model

    This is of course not a real scientific model it is a formal and polite way to accuse someone of causing their symptoms because of their flawed personality.
     
    Last edited: Jan 29, 2015
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  15. Dolphin

    Dolphin Senior Member

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    It will be very annoying if the BMJ publish their letter but none of the other letters.
    Theirs is 310 words and 5 references so would just fit into the limits the BMJ generally apply for published letters.
     
    Last edited: Jan 29, 2015
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  16. Esther12

    Esther12 Senior Member

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    Even if the BMJ do publish some concerns, they will likely to so cut down that the Chalder response might seem worthwhile.
     
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  17. eafw

    eafw Senior Member

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    I was wondering if there is anywhere else we can get the best responses published ? Do the letter writers still have rights over their content such that it can be reproduced in a newspaper article for instance ?
     
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  18. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    I would think so.
     
  19. jimells

    jimells Senior Member

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    How do they know there is an "absence of pathology", as opposed to "no pathology detectable by current technology"?
     
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  20. lansbergen

    lansbergen Senior Member

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    They can not know.
     
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