Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
Discuss the article on the Forums.

'New Chronic Fatigue Syndrome Treatment' (Don't get your hopes up!...it's from the UK)

Discussion in 'General ME/CFS News' started by Countrygirl, Sep 10, 2017.

  1. Countrygirl

    Countrygirl Senior Member

    Messages:
    3,813
    Likes:
    19,815
    UK
    More re-packaged rubbish from the usual source.

    https://www.medicalnewsbulletin.com/new-chronic-fatigue-syndrome-treatment/

    This represents us, apparently:



    [​IMG]

     
  2. Cheesus

    Cheesus Senior Member

    Messages:
    1,281
    Likes:
    5,971
    UK
    What is specialist medical care anyway? Is it a euphemism for doing nothing?
     
  3. Chrisb

    Chrisb Senior Member

    Messages:
    1,051
    Likes:
    5,362
    The picture certainly gives an insight into what you all look like.

    Pity there's no picture of a man so I could check the image with reality.
     
    Jan, Invisible Woman, Mij and 10 others like this.
  4. Countrygirl

    Countrygirl Senior Member

    Messages:
    3,813
    Likes:
    19,815
    UK
    Got it in one, @Cheesus :thumbsup:
     
  5. Valentijn

    Valentijn Senior Member

    Messages:
    14,281
    Likes:
    45,893
    Damn, we're hawt! :woot:

    Yes, in the UK at least. I think it might involve a pat on the head at regularly scheduled intervals, if you're lucky.
     
  6. Countrygirl

    Countrygirl Senior Member

    Messages:
    3,813
    Likes:
    19,815
    UK
    Here you are @Chrisb .

    A snapshot from the local fatigue clinic's GET session:


    [​IMG]
     
    TakMak, fingers, atleje and 23 others like this.
  7. slysaint

    slysaint Senior Member

    Messages:
    2,124
    Likes:
    11,485
    TiredSams female counterpart? GETSET Julies rival?
    upload_2017-9-10_11-40-10.jpeg

    eta: GET is hardly new(?)
     
    Mary, Jan, Invisible Woman and 10 others like this.
  8. Mrs Sowester

    Mrs Sowester Senior Member

    Messages:
    1,033
    Likes:
    7,297
    Don't knock Head Pat Therapy @Valentijn, I don't know how I'd get through the week without it and my other favourite Patronisation Therapy, Hair Stroking.
    These wonderful alternative therapies make me feel so special in my wheel chair.
     
    slysaint, Mary, Jan and 14 others like this.
  9. hellytheelephant

    hellytheelephant Senior Member

    Messages:
    1,011
    Likes:
    5,008
    S W England
    So there I was, working out (graded of course).... when a photographer appears and takes a photo of me hard at it ( tosses blonde hair) but frankly, what can I expect when I look SO DAMN GOOD??!!;);););););););).
     
  10. keenly

    keenly Senior Member

    Messages:
    677
    Likes:
    709
    UK
    More nonsense.
     
  11. ladycatlover

    ladycatlover Senior Member

    Messages:
    200
    Likes:
    1,085
    Liverpool, UK
    Interesting timing of publication with the NICE stuff happening at present. Including all the patient evidence showing GE is harmful to a (large) proportion of patients and only helps a tiny proportion. Worrying really.
     
  12. alex3619

    alex3619 Senior Member

    Messages:
    12,972
    Likes:
    36,840
    Logan, Queensland, Australia
    Not quite. You might get an aspirin or something if you need one.
     
  13. Joh

    Joh Inactivist

    Messages:
    846
    Likes:
    4,941
    Germany
    I think we can safely assume that that's the case in all/most countries when it comes to ME. I can certainly vouch for Germany (no sleep, pain, or POTS meds or any other form of treatment for me).

    [​IMG]By the way this is how I look when I'm typing messages on PR (I earned myself this green smoothie after a GET session this morning):
    [​IMG][​IMG]
     
    Mary, TigerLilea, Jan and 9 others like this.
  14. Quilp

    Quilp Senior Member

    Messages:
    212
    Likes:
    515
    They've missed the one with me jumping out of an aeroplane clinging onto my favourite rubber doll , wearing nothing but my anti fungal socks and landing safely from thirty thousand feet onto Simon Wessely's bed of lies
    Which one are you ?
     
  15. lansbergen

    lansbergen Senior Member

    Messages:
    2,511
    Likes:
    2,727
    Ach, I see you can still make fun.
     
  16. Countrygirl

    Countrygirl Senior Member

    Messages:
    3,813
    Likes:
    19,815
    UK
    Oh no we didn't @ Quilp!

    Nothing gets past us on PR! :whistle:

    Here you are! Taken just before you jumped.


    [​IMG]
     
    Mary, TigerLilea, Jan and 8 others like this.
  17. Quilp

    Quilp Senior Member

    Messages:
    212
    Likes:
    515
    lol will somebody please put my teeth back in :)


    [​IMG][/QUOTE]
     
    Mary, TigerLilea, Jan and 7 others like this.
  18. Barry53

    Barry53 Senior Member

    Messages:
    2,277
    Likes:
    13,720
    UK
    Say that too loudly and the next thing you know they'll be doing a remote web-based version of it. You get told to give yourself a pat on the head I expect.
     
  19. Joh

    Joh Inactivist

    Messages:
    846
    Likes:
    4,941
    Germany
    Ok, so this thread inspired me to google "graded exercise therapy" using picture search. This is what I found (no joke). Enjoy:
    [​IMG]
    NOW I get it! At last!

    [​IMG] [​IMG]
    [​IMG] [​IMG]
    Funny, I always go to the beach (preferably at sunrise) for my graded exercise, too!

    [​IMG]
    As long as there is a nice view like a river I can reluctantly do a little GET without a beach on occasions.

    [​IMG]
    I really hope the green thing in the background is a palm tree? Otherwise this scenery is not acceptable for GET!

    [​IMG]
    Haha, of course I made that mistake on purpose. Love being corrected by Pierre, the good looking physiotherapist, whom hard working people pay for me with their taxes.

    [​IMG]
    Ok, had to click on this picture. And found this first sentence:
    [​IMG]
    That's right! GET should involve some community work like gardening in public parks! These malingerers with their chronic fatigue get enough of our tax money!

    [​IMG]
    This picture is used on an article called "How Can I Start a Graded Exercise Program for Chronic Fatigue Syndrome?"
    Glad that this is only the start of a GET program, doesn't look too challenging. Do we get these trousers at the local fatigue clinic?

    [​IMG]
    Oky doky! See you all at the beach at sunrise!
     
    Last edited: Sep 10, 2017
  20. Barry53

    Barry53 Senior Member

    Messages:
    2,277
    Likes:
    13,720
    UK
    What's missing from this illustration, is that many of the steps are traps that collapse under your weight, dropping you not just back to the floor, but much deeper down into a dark basement there is no way out of. That would be a much more realistic representation.
     

See more popular forum discussions.

Share This Page