Hello all,
(Again). I was recently went to a support group and after mentioning that I have major vision issues (I can see everything, but I cannot process it unless I strain, once I strain then although I can focus I can only focus on a drop at a time) a few people mentioned that maybe my initial cause was mold toxin. This makes sense as I have a terrible time with mold, with severe allergies and exasperation to many of my symptoms (breathing/sleeping/headaches).
I seem to come to the realization (correct or not) that every (or many) approaches seem to help 5%-10% of us CFS'ers. Whether it is because the body systematically shuts down and we all have different initial systems that shut down (and need to find which one), or the system has shut and many treatments jump shot our systems (and our bodies all respond to different jumpstarts) or because CFS is an umbrella of systematic illnesses. Whatever. I also think that many treatments help us 5%-10%.
John66 mentioned Dr. Shoemaker. I have asked around and he does seem to be good in his field, but narrow-minded in only his field. He will not acknowledge others. I am thinking of going down, although to an extent I would rather not, as it is a travel, and I have just moved from maryland (and from the one insurance that he covers). I therefore am thinking of asking my primary to run similar tests and if they are positive to either take the medication he recommends or going down.
My questions are as follows:
Love yall.
Lo
(Again). I was recently went to a support group and after mentioning that I have major vision issues (I can see everything, but I cannot process it unless I strain, once I strain then although I can focus I can only focus on a drop at a time) a few people mentioned that maybe my initial cause was mold toxin. This makes sense as I have a terrible time with mold, with severe allergies and exasperation to many of my symptoms (breathing/sleeping/headaches).
I seem to come to the realization (correct or not) that every (or many) approaches seem to help 5%-10% of us CFS'ers. Whether it is because the body systematically shuts down and we all have different initial systems that shut down (and need to find which one), or the system has shut and many treatments jump shot our systems (and our bodies all respond to different jumpstarts) or because CFS is an umbrella of systematic illnesses. Whatever. I also think that many treatments help us 5%-10%.
John66 mentioned Dr. Shoemaker. I have asked around and he does seem to be good in his field, but narrow-minded in only his field. He will not acknowledge others. I am thinking of going down, although to an extent I would rather not, as it is a travel, and I have just moved from maryland (and from the one insurance that he covers). I therefore am thinking of asking my primary to run similar tests and if they are positive to either take the medication he recommends or going down.
My questions are as follows:
- Does that make sense. Should I ask my primary to run initial mold tests and then possibly ask him to deal with it, or should I go directly to the expert?
- If there are positives should I ask my primary to start me off on the main medications or go to Dr. Shoemaker?
- Most important, does anyone know what tests there are for mold, and what tests Dr. Shoemaker runs? (I tried his visual test and passed. It's not that I cannot see, I cannot process?) Did anyone go to him and have the list of tests?
- And does anyone know his protocol. He mentions that he starts with cholestyramine, but curious in a generic term what else. (No I'm not going to take it without a doctor, but unfortunately we all need to tell our gp's what's out there.)
Love yall.
Lo