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MERUK: Severely affected ME/CFS patients – a geographically defined study

Discussion in 'General ME/CFS News' started by Firestormm, May 17, 2014.

  1. Firestormm

    Firestormm

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    Cornwall England
    Be interested to learn how many are in the study, and how much it will cost if anyone can find out :)
     
    Last edited: May 17, 2014
    justy, Bob, Valentijn and 2 others like this.
  2. alex3619

    alex3619 Senior Member

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    I was reading their Severely Overlooked by Science essay, and I think there are problems with it. Those problems appear to be more about how existing research is conceptualized than about future research. Mostly it has to do with interpretation of data from things like the FINE trial. Subjective data is being taken as the same level of evidence as objective data.
     
    Esther12 and merylg like this.
  3. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    I wonder it the muscle strength test should be a two day one.
     
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  4. alex3619

    alex3619 Senior Member

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    I think it should be, and so should cognitive testing, until and if we learn otherwise.
     
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  5. Min

    Min Guest

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    I tentatively welcome this, having supported MERUK's excellent work over the years. The severely affected have so far only been included in the farcical FINE trial in UK research.

    It is concerning to some that MERUK have joined the CFS/ME Collaborative that includes Prof of Psychiatry Peter White of the PACE trial, Dr Esther Crawley of the SMILE trial of the Lightning Process on children, and AfME, also involved in PACE.

    I do hope researchers will look for persistent pathogens in the severely affected in the near future.
     
    Valentijn and justy like this.

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