Discussion in 'General ME/CFS News' started by Firestormm, May 17, 2014.
Be interested to learn how many are in the study, and how much it will cost if anyone can find out
I was reading their Severely Overlooked by Science essay, and I think there are problems with it. Those problems appear to be more about how existing research is conceptualized than about future research. Mostly it has to do with interpretation of data from things like the FINE trial. Subjective data is being taken as the same level of evidence as objective data.
I wonder it the muscle strength test should be a two day one.
I think it should be, and so should cognitive testing, until and if we learn otherwise.
I tentatively welcome this, having supported MERUK's excellent work over the years. The severely affected have so far only been included in the farcical FINE trial in UK research.
It is concerning to some that MERUK have joined the CFS/ME Collaborative that includes Prof of Psychiatry Peter White of the PACE trial, Dr Esther Crawley of the SMILE trial of the Lightning Process on children, and AfME, also involved in PACE.
I do hope researchers will look for persistent pathogens in the severely affected in the near future.
You can also try a Google Site Search
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