Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Massive opportunity! Donate to Canary in a Coalmine to let it take advantage of the TED effect!

Discussion in 'General ME/CFS News' started by Sasha, Jul 5, 2016.

  1. Sasha

    Sasha Fine, thank you

    Amid all the amazing output that comes from Jen Brea - @JenB - via her work on her documentary and #MEAction, somehow the calls for donations don't seem very prominent but we need to chuck some money at this so she can take advantage of the "TED effect".

    She's got very (very!) good reason to expect such an effect when her TED talk goes up on YouTube in the fall (I'm assuming she'll be timing it to boost the #Millions Missing campaign in September).

    Just got this email, which I've broken up a bit for readability. Paragraph 3 and onward are very important (and exciting!).

    Let me give that donation link again!

    This is it! This is a huge breakout opportunity. Let's get our wallets out!
    Last edited: Jul 5, 2016
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  2. Bob


    England (south coast)
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  3. Old Bones

    Old Bones Senior Member

    Excellent "Bang for the Bucks"! Done. Can't wait to view the TED talk this fall.

    TED Resident Liz Jackson's blog article is very powerful, and well worth reading.
    A few quotes:

    "I don’t have a best day of my life (there are many). But I sure as hell have a worst day. And it’s not the day I acquired my illness. The worst day of my life happened 265 days later. At the Cleveland Clinic. In the office of a renowned Neurologist. A distinguished man who carried himself like my dad. The entire day felt like a trick. I had gone home to the Cleveland area for the holidays. My parents and I thought a visit to this doctor couldn’t hurt. We could not have been more wrong. It hurt the worst. He told me directly that I was faking my illness. And for a moment, perhaps because he looked like my dad, my parents believed him. I tried to believe him too."

    "I am someone who embraces and requires the support of a beloved therapist. And I am someone who began to resent the emotional and behavioral support I require, because of one dismissive Neurologist who led me to believe that something was wrong with me. He led me to believe I was unfixable. I now know the truth; I wasn’t broken. The system was."
    Last edited: Jul 5, 2016
    Dolphin, OhShoot, Valentijn and 3 others like this.

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