International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Lyme Disease patients abandoned in Australia - Channel 7 report

Discussion in 'Lyme Disease and Co-Infections' started by Antares in NYC, Oct 2, 2015.

  1. Antares in NYC

    Antares in NYC Senior Member

    For my Aussie peeps: this is important, and I'm glad people all over are waking up to the dangers of governments ignoring the Lyme epidemic:

    Lyme Disease patients abandoned in Australia and drawn overseas for treatment, as the federal government will not accept that Lyme Disease exists in Australia.
    Marky90, duncan and heapsreal like this.
  2. alex3619

    alex3619 Senior Member

    Logan, Queensland, Australia
    Even in 1999 there was monitoring of Lyme in Australia. At that time they were getting 7 cases of confirmed Lyme for people who had not been overseas. This was one of the talks at the 1999 ME/CFS conference in Sydney. So there appear to have always been a few cases. What the big question is why is this apparently spreading.?

    Now if they authorities were right, and this is not Lyme, then why is there not a big push to find out what is actually wrong? Where are the federally funded clinical studies? Pilot studies?

    Accusations of faking it are patient abuse. No nurse should be making them. I hope anyone this happens to files a formal complaint with the hospital. If its brushed off I hope they take it up with their state health minister. Of course most people this happens to are too sick to fight for their rights or fair treatment.

    Its again a case of there is no locally recognized diagnostic test. Yet I bet if there were examinations and studies looking for pathophysiology they would find a lot.

    There is also the issue that Lyme disease might not be Borrelia, or at least not the usual species. Australia has its own pathogens. A tick bite also transfers many different pathogens.

    All of this begs for more research.

    I would like to point out though that the treatments in Germany have not been scientifically tested. A formal study should be a priority. Journalists who are covering such stories should be asking about formal studies. If the treatments don't really work then they would be shown to not work. If however they do work as advertised they would be on the way to becoming mainstream treatments. Its a win-win.
    Valentijn, alkt, Marky90 and 4 others like this.
  3. merylg

    merylg Senior Member

    Sydney, NSW, Australia
    Valentijn, Antares in NYC and duncan like this.

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