I think sometimes the illness is not clear cut - especially in the young who ares till able to function quite well whilst ill. I first came down with it at 25 - lots of immune problems and fatigue - similar to that described by Dr Chia of his son. It wasnt until years later - after measles and pneumonia at 38 - that i became so sick and had to give up all work, became housebound and got a diagnosis of M.E/CFS. He did say he was in denial about it - not wanting to admit his son was sick with this awful disease that he didnt think he could cure.
I think its sad that many of our best Dr's only got involved or stayed involved for personal reasons - yes we are lucky to have them, but we need to be seeing younger Dr's and researchers moving into this field. As Dr Peterson says inn a different M.E/CFS alert, M.E research is at the cutting edge of medical research, with proteomics, systems biology etc being used, you would think it would attract the keen young things, but it doesnt seem to - and it wont until we have a more well defined illness with some biomarkers and perhaps treatments.
All the best, Justy x