Alex:
I have come to agree with you. I have taken Valcyte that helped me a great deal, but did little for the fatigue.
I have been taking Oxymatrine for about five years now. I started on the White Tiger brand, and switched to Equilibrant after it became available. I am taking a variety of other immune shifting supplements, including LDN, Rich's methylation supplements, and Artesunate.
So far, the results have been good, but not great. I do feel that my immune system is shifting, since I have had four colds in the last year, after going over 20 years without one. After watching Lewyllen Kings interview with Dr, Chia, I am upping my dose of Equilibrant. I had been taking three a day, but I am going to see if I can work my way to 9. In the interview, Dr. Chia mentioned that his son Andrew had taken 9 a day. I have met Andrew, and he certainly seems to have recovered.
I had Dr. Chia test a stomach sample and he found a greater than 50% prevalence of EV's. Testing at ARUP verified that I have three different EV's present. It is my belief that it is going to take some amount of time for my immune system to clear that many cells, so I am prepared to stick with the Equilibrant for the long haul.
I don't believe that we will have the full story until we can determine what is causing our immune systems to stay stuck in TH2 mode. It is my belief that the immune shift the we seem to suffer from allows the EV's to proliferate and do their damage.
I have noticed that if I stop the Oxy for any length of time, I start feeling considerably worse. I have had stomach problems for many years, and have taken a lot of Zantac. As I have upped my dose of Equilibrant, the need for Zantac has all but disappeared. I can eat almost anything without the problems that I had before.
I am taking a daily dose of Manuka honey that is very helpful for my GI tract. Interesting product from your area of the world ( New Zealand).
In 2005, I was spending almost all day in bed. My blood pressure had dropped to 80/50 with a pulse of 50. Today, my BP runs about 115/70, and I am able to watch my grandson two days a week. Keeping up with a two and a half year old is a challenge, but I am able to do it. I need to spend a day resting up afterward, but the PEM is tolerable.
It is winter here in North America, which is always my worst time, but this year is not nearly as bad as last year.
John