International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Link to last night's panel discussion at Berkeley with Dr David Tuller and Prof Ron Davis

Discussion in 'General ME/CFS News' started by Countrygirl, Feb 21, 2018.

  1. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    Such claims go back to the 90s or even 80s. This is not the first time. What is interesting is this happened during development of an animal model.
     
    pibee likes this.
  2. Gemini

    Gemini Senior Member

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    Appreciate the panel members and Ron Davis' participation and research update.

    His opening comments [5:20 - 9:20 on video] are worth a listen; he notes the collection of vast amounts of data since his appearance in the film UNREST.

    Data analysis is revealing patterns of heterogeneity in how ME/CFS is "expressed." He's still pretty optimistic they can trace it back to a single cause, however, hence a focus on cause not heterogeneity.

    Hearing this I thought it might tie in with Step 1 of Dr. Naviaux's 3-Step Treatment Strategy presented at the Community Symposium:

    1. Remove the CDR trigger if still present
    2. Refill the metabolic tank
    3. Use antipurinergic therapy

    @Cinders66 I agree with you about the compassion and dedication. A stellar International Working Group of researchers, sharing data, involving the patient community, working collaboratively, open to input....so much to be grateful for!

    Edit: Link at 17:43 on Naviaux's presentation:
     
    Last edited: Feb 25, 2018
    ljimbo423 likes this.

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