International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Letter to Valvira - Finland's National Supervisory Authority for Health and Welfare - CBT and GET

Discussion in 'General ME/CFS Discussion' started by Jo Best, Sep 13, 2017.

  1. Jo Best

    Jo Best Senior Member

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    INVEST IN ME RESEARCH EXPRESSES CONCERN REGARDING USE OF CBT AND GET http://www.investinme.org/IIME-Newslet-1709-02.shtml

    [​IMG]


     
  2. Jo Best

    Jo Best Senior Member

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    Invest in ME Research is a founder member of the European ME Alliance ( http://www.euro-me.org).

    The Finnish member organisation of the European ME Alliance is Suomen CFS-Yhdistys - Finlands CFS-förbund (http://www.euro-me.org/Finland CFS-Yhdistys.htm - their website - http://cfsmery.fi/)

    @Mike Harley asked the Finnish CFS Association what it was like to live with ME there and what treatments were available. Here’s an edited summary of what he found out: http://www.mikeseumarathons.eu/finland.html


    .
     
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  3. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    Excellent!!! :woot: (The response by IiME of course.)
     
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  4. Jo Best

    Jo Best Senior Member

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    After receiving no reply, IiME Research followed up and Valvira has now removed from its website the statement to the effect that, "Treatments that have some evidence of efficacy (graded exercise therapy and cognitive behavioural therapy) should be made available in the whole country." A small but important change.

    Congratulations Finland on 100 year independence anniversary today :balloons:
     
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  5. Hikaru

    Hikaru

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    Finland
    I'm really hoping that the desire to develop guidelines will finally get Kela to treat it as an illness.
     
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