Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Jo Bongiorno - routine and success story

Discussion in 'General Treatment' started by Gecko, Apr 8, 2015.

  1. Gecko

    Gecko

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    Hi all,

    Along with my CFS I have many Menieres symptoms and in fact this is what I was initially diagnosed with before it being changed to Labyrinthitis, then CFS.

    I beleive this is where the virus started with me and the subsequent illness. (I have blocked ear feeling, dizziness, fatigue, tinnitus, etc etc)

    Has anyone seen this by Joe Bongiorno?

    https://joebongiorno.com/menieres-disease

    It tells of his success story with Menieres and I wondered if it would help me.

    Any thoughts?
     
  2. halcyon

    halcyon Senior Member

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    I had a similar progression. Viral illness, followed by labyrinthitis, followed by ME. The dizziness fluctuated in cycles for many months, before finally settling on a constant disequilibrium with random bouts of increased dizziness. It also caused tinnitus, hyperacusis, and tensor tympani syndrome. When I was researching the labyrinthitis, I kept coming across HSV and enterovirus as suspects. I'm negative for HSV and positive for enterovirus.

    I'm not sure where you live and if you'll have access to testing, but I'd try to get tested for HSV 1 and 2 as well as coxsackie B and echovirus.
     

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