Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Is this POTS or another type of Tachycardia?

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by ChrisD, Nov 4, 2018.

  1. ChrisD

    ChrisD Senior Member

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    East Sussex
    POTs has always been a mild syndrome for me, not causing severe nausea and dizziness/fainting etc. More just OI and a bit of a funny head upon standing + 30BPM HR increase.

    But a couple of weeks ago I took a high dose intensive course of PRObiotics and started to experience a couple of issues e.g. I became Dairy intolerant for 3 days (IBS-D) which I don't usually have. Then over the past week I've had increasing Tachycardia/POTS which has become quite intense.

    My usual HR resting is: 60BPM, sitting: 70-80bpm, standing: 90-100bpm, walking: 115bpm
    But it has gone up to: 80-90 Resting/Sitting, Standing: 105-110bpm and Walking 120bpm+

    Additionally to HR, my heart is thudding and chest can become quite tight/strained which is uncomfortable and unsettling. I actually remember having something like this when I first became ill with ME after an infection - I had an ECG and it revealed Sinus Tachycardia which was put down to 'anxiety' yet later in my research i realised that a lot of infections can cause this.

    I have read some advice to lay flat to relieve it but interestingly when I lie down it is as bad as 90BPM. According to this page: http://www.potsuk.org/types_of_pots It makes it more likely to be IST - Inappropriate Sinus Tachycardia.

    My diagnosis is ME/CFS from the NHS but I do have positive Armin labs results for Borrelia, Mycoplasma, CPn, Coxsackie. So I have a theory that the probiotics may have charged up my immune system and rattled these infections, or its just rattled my immune system, OR because I have leaky gut there is either some die off or translocation of bacteria into the blood stream.

    High dose Vitamin C helps to lower HR by about 10BPM for a few hours, so I feel that this could be something viral/bacterial.

    Any other ideas? Usually I am mostly housebound but able to go out a few hours a day for walks etc. but at the moment I am totally housebound because if I do any exercise it flares the POTS up really badly and I can't sleep.
     
    sb4 and ljimbo423 like this.
  2. pibee

    pibee Senior Member

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    many POTS patients have also high resting HR. Especially hyperadrenergic which is more linked to MCAS.

    For IST you need to have daily average 100+ even during night (from what I remember)

    but your POTS seems borderline, you should also check your standing BP to see if it drops, as it could be OHypo and not POTS.
    or do a proper tilt table test.
     
  3. ryan31337

    ryan31337 Senior Member

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    South East, England
    My cardiologist diagnosed me as POTS with features of IST. I assumed it was sneaky talk to justify prescribing Ivabradine, but I later discovered there is literature suggesting IST and POTS overlap, thought of by some as two points on a spectrum disorder.

    Your description is very typical of an acute POTS flare for me. In my case usually a viral infection/reactivation, or just payback from doing too much the day before. My resting HR will increase in those scenarios.
     
    Sidney, ChrisD and sb4 like this.

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