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Is there a blood or urine test that can detect acetylcholine deficiency?

Discussion in 'Diagnostic Guidelines and Laboratory Testing' started by Peyt, Feb 17, 2016.

  1. Peyt

    Peyt Senior Member

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    Is there a blood or urine test that can detect acetylcholine or Choline deficiency?
     
    Theodore likes this.
  2. Peyt

    Peyt Senior Member

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    Any test?
     
  3. Gingergrrl

    Gingergrrl Senior Member

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    @Peyt I have much confusion re: this issue as I feel acetylcholine is a major factor in my illness. I have a very low window of tolerance for cholinergic and anti-cholinergic meds. The Neuro I just saw ran some kind of blood test that got sent to Mayo Clinic that measures one of the antibodies for acetylcholine but I don't think it measures the Ach level itself. But I am the last person to understand this stuff so will be watching this thread for other responses!
     
  4. Peyt

    Peyt Senior Member

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    Thanks for your post,
    Well even if there is a test that measures the anti body that can shed some light on the Choline deficiency that would be fine...
    Did they ever give you a copy of the test results? Do you remember the name of that antibody?
    Thanks
     
  5. Gingergrrl

    Gingergrrl Senior Member

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    @Peyt I just did the test less than a week ago and do not have the results yet. They did not give me the name of the test or antibody, only that it related to myesthenic syndrome/Ach antibodies and was being shipped to Mayo. I plan to learn more in the upcoming weeks.
     
  6. Peyt

    Peyt Senior Member

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    I did a google search and it looks like that test is performed to find out if someone has myasthenia gravis..
    Never heard of myasthenia gravis, but the symptoms shown here: http://www.mayoclinic.org/diseases-conditions/myasthenia-gravis/basics/definition/CON-20027124
    are not too far off from what I have... I even have the drooping eyelids.
     
    roller likes this.
  7. picante

    picante Senior Member

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    I think loads of people with methylation troubles have drooping eyelids.
     
  8. Gingergrrl

    Gingergrrl Senior Member

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    @Peyt the Neuro I saw did not think that I had MG (and I have no eye issues) versus a possible myesthenic syndrome or something with the Ach antibodies. My most pronounced issues are with my lungs and breathing. I have no idea yet how this all fits together and each day is like being a medical detective except one who lacks any science background. I will post more once I know it but so far, this is the extent of what I know.
     
    picante likes this.
  9. Peyt

    Peyt Senior Member

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    Please do,
    Regarding your lungs and breathing, did they ever measure your Oxygen levels?
     
  10. roller

    roller wiggle jiggle

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    do you know how much this test is?
    (and how long it does take to get the results?)

    when its sent do mayo clinic then its a rather complicated thing?
     
  11. Gingergrrl

    Gingergrrl Senior Member

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    @roller sorry for the delay and I missed this post somehow. I have no idea what the test will cost after my insurance pays their portion. I had a total of three blood tests by Neuro (two were sent to Mayo) and I believe it will take 2-3 weeks to get all the results. It's been a little over one week at this point and I have not heard anything yet. It was not complicated for the doc to send the tests to Mayo from Stanford but am not sure how this would be from a regular lab like Quest or Lab Corp. Are you in the US?
     
    roller likes this.

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