I need a recommendation for a good Lyme literate doctor in the NYC area

[Antares in NYC]

Hi everyone,

While my CFS doctor has been able to treat some of the Lyme symptoms I have endured, my overall condition keeps worsening. I seem to have all the right markers for both ME/CFS and a positive ellispot (and CDC) Lyme test from Igenex. I just keep sinking further down, and I'm getting quite scared of the consequences.

My doctor suggests that I should follow up with a Lyme-literate doctor, but doesn't have any recommendations other than Dr. Raxlen, who obviously doesn't take insurance.

I would appreciate it if I could have some recommendations for Lyme specialists in the NYC area that could help me improve. I know that most Lyme specialists don't take insurance due to the lovely mess that the IDSA made with their guidelines. I do not have a lot of money, but I will have to bite the bullet, even if it involves getting less visits, carefully dosing the prescriptions, i just don't know what I'm going to do. I know I just have to follow up with a Lyme specialist since I keep getting worse and sinking further down every day.

Any thoughts, suggestions or advice are really appreciated.

(PS: feel free to message me directly if you prefer so)

 

[duncan]

Ken Leigner.

 

[justy]

Could you make it up to see Horowitz? I know its not NYC area, but if I could I would travel all the way from the UK to see him!

 

[duncan]

As the crow flies, they are not that far from one another. Take them both in.

 

[MCRobbie]

Im slowly planning on a visit with Horowitz.

 

[catly]

Just north of NYC is Daniel Cameron in Mt. Kisco (Westchester County). Cameron is pretty much the "grandfather" of the chronic Lyme movement that began in the 1980's. I'm not sure if he still accepts new patients, but I think he may have associates that do. Mt Kisco is probably 45 minutes on Metro North.

Horowitz is in Hyde Park NY, I think Metro North also passes through there but it's probably close to 2 hours train ride or car ride.

 

[Antares in NYC]

Thanks for recommendations, folks.
Anyone can speak for true, positive improvement after long-term Lyme after visiting any of these doctors?

Also, has anyone been treated by Dr. Raxlen? Any opinions, thoughts?

 

[Aerose91]

In orange Connecticut is Dr Amiran Katz. He's a neurologist who started moving over to functional medicine type practices, specifically for Lyme. My current functional doc recommended i see him because of my psychiatric symptoms and he was the first one to find bartonella. He's not cheap and it was difficult for me to borrow enough money to see him but he has a great reputation among those who have been to him. I've only had 2 visits so far.