I love this New Podcast with Ron Davis 6/15/17

[Marky90]

I've had a listen to this. I love to hear Ron talk it's always such a hopeful positive experience.
Something that caught my attention at the end was a reference to Whitney having briefly improved. Does Ron say that this improvement followed a fever? Or am I misunderstanding? I have been wondering why a fever would lead to an improvement.

Yup correct. Anyones guess at this point.. Maybe it transiently shifts a chronic immune activation somewhat, giving symptom relief

 

[mango]

Is anybody working on a transcript of the interview?

 

[Grigor]

Is anybody working on a transcript of the interview?

I would love one too but will be a long one I guess?

 

[mango]

I would love one too but will be a long one I guess?

Probably wouldn't be too much work if a few people got together and did a small part each?

ETA: I'll start working on a transcript now. We'll see how far I'll get.

 

[ljimbo423]

After about two hours, CFS patient samples showed an increase in electrical impedance which is not seen in samples from healthy controls. Dr. Davis likened this to seeing PEM at a cellular level.

I listened to Ron explain this. That's the first time I've heard anyone directly connect the increase in electrical impedance to PEM. This gives me a clearer picture of PEM. Thanks for posting this.

Speaking of which, my PEM seems to be coming on sooner and I am recovering sooner from it. Hopefully some of the things I'm doing are helping to move me in the right direction. Nice to know someone like Ron is helping to figure this out!

 

[mango]

I've done a sloppy transcription of the whole interview now. Anybody up for helping out? Checking for mistakes, adding in a few words I didn't catch, improve the formatting etc?

 

[Marky90]

I've done a sloppy transcription of the whole interview now. Anybody up for helping out? Checking for mistakes, adding in a few words I didn't catch, improve the formatting etc?

I can

 

[mango]

I can

Yay! Brilliant! Thank you so much!

Sending you PM right now

 

[Hilary]

Thanks for posting this @JaimeS - I couldn't follow every detail of the bit in the middle about the technology Ron is developing, but as a non-scientist I found most of it very accessible. Listening to him does just turn up the volume a little on that sense of hope which some days is so elusive...

Hope you're feeling better

 

[JaimeS]

Thank you, @Hilary -- the worst, one of those crashes where I can't figure out what I did. But clawing my way back up the other side, now.

 

[Hilary]

Thank you, @Hilary -- the worst, one of those crashes where I can't figure out what I did. But clawing my way back up the other side, now.

Oh I hate those - so much easier when you can figure out what's happened or what you've 'done wrong'. Glad you're on the up again.

 

[mango]

Transcript of the interview now published on OMF's website

https://www.omf.ngo/wp-content/uploads/2017/06/Mendelspod-Podcast-Transcript.pdf

ETA: Here's OMF's original blog post about the interview/podcast episode:
https://www.omf.ngo/2017/06/15/mend...-by-research-ron-davis-of-stanford-thinks-so/

 

[ljimbo423]

Thank you @mango and anyone that helped! I'll be reading it through tomorrow. Having a transcript makes it much easier to grasp the info, because I can read it over 3 or 4 times when I need to, which is often. Thanks again!

 

[Starsister]

So many great tidbits in this. It's so HIM! It made me cry.
https://mendelspod.com/podcasts/last-major-disease-ignored-research-ron-davis-stanford-thinks-so/

Janet, thanks for sharing this! I am in tears just hearing the voice of someone who cares about us. I'm fairly new to this site and am so in awe of the knowledge you all have about CFS and what is going on that may help us.