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Good Morning.
I am a patient from Spain and I do not speak English very well, so I use the Google translator, excuse me if there is an error.
I have POTS and I am researching all forums, studios, etc. to see if I can find a cause and solution. I have verified that in the USA, if the POTS is of autoimmune origin, they prescribe inmonuglobulinas IV (IGIV if I am not mistaken) with enough good results. So the first thing is: how to know if the POTS is of autoimmune origin? What do I ask in the analyzes? I guess I'll have to ask for autoantibodies, like beta adrenergic. But I do not know what else to ask, nor if they will do it in a laboratory in my country. If I test positive for autoimmunity, in Spain they do not prescribe this treatment, I would have to try to ask some good doctor to listen to me and read the cases of improvement / cure in the USA. But the first step is to know if my POTS is self-imposed.
I am also looking at mast cell activation syndrome because, apart from POTS and more, I have positive dermographism. I have taken blood to look at the triptase and go to a center specializing in mast cells.
Thanks and regards!
I am a patient from Spain and I do not speak English very well, so I use the Google translator, excuse me if there is an error.
I have POTS and I am researching all forums, studios, etc. to see if I can find a cause and solution. I have verified that in the USA, if the POTS is of autoimmune origin, they prescribe inmonuglobulinas IV (IGIV if I am not mistaken) with enough good results. So the first thing is: how to know if the POTS is of autoimmune origin? What do I ask in the analyzes? I guess I'll have to ask for autoantibodies, like beta adrenergic. But I do not know what else to ask, nor if they will do it in a laboratory in my country. If I test positive for autoimmunity, in Spain they do not prescribe this treatment, I would have to try to ask some good doctor to listen to me and read the cases of improvement / cure in the USA. But the first step is to know if my POTS is self-imposed.
I am also looking at mast cell activation syndrome because, apart from POTS and more, I have positive dermographism. I have taken blood to look at the triptase and go to a center specializing in mast cells.
Thanks and regards!