The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
Discuss the article on the Forums.


Discussion in 'General ME/CFS Discussion' started by Justin30, Jun 5, 2016.

  1. Justin30

    Justin30 Senior Member

    Hi Everyone,

    I was wondering if any of you could help me out with this. I have POTS and am looking for an article that suggests recommeded levels of serum Potassium in hypovolemic POTS Patients.

    Also and article that shows shortness of breadth/ Dyspenea as a POTS symptom as well as Hypoxia.

    I know this isnt the right place for it but I need feedback.

    Thank you in advance.
  2. ahimsa

    ahimsa Rarely on PR now

    Hi @Justin30

    I don't have an exact answer for you. But I do have a reference listing a recommended amount of potassium for patients with Orthostatic Intolerance (POTS or NMH) who are taking Florinef (fludrocortisone).

    (emphasis mine)

    This section makes it sound like the serum level of potassium is not a very reliable measurement?

    This extract is from page 14 of the following document:

    I'm also taking a prescription version of potassium along with Florinef. It's a time released version, and has 10 mEq potassium (which is about 750 mg).

    I don't know whether POTS patients are advised to take extra potassium if they're not on Florinef.

    I've attached a document on POTS that might help? Of course, some of these documents on POTS don't always apply to patients who have Orthostatic Intolerance in addition to ME or CFS. (or as a part of ME/CFS, depends on diagnostic criteria used)

    Sorry, I don't remember details of this document and do not have time/energy to re-read it right now. But I hope it is helpful for you!

    Attached Files:

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