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Hey
I had 2015 my first severe ME year, with herpes 6 reactivation (was not treated by doctors) ,lots of infections wich took me to the ER here in Germany (where also not taken serious) and the blood tests showed high troponin where i was showing all signs of a myocarditis , also in EKG ( t negative waves, arrithmia, etc ) .
But they didnt think about doing a heartmuscle biopsy in this moment .
Now i have checked with a new doctor my heart echo from last year, where stays :
ventricular right and left hypertrophia ( i google it and this should be cardiomyopathy )
heart valves inssufficiency level 2 ( there are mild, moderate and severe , where you need valve replacement)
Before 2015 my heart was PERFECT
I urgently need a heartmuscle biopsy because i am 100 % sure i have a silent chronic myocarditis wich its producing this problems.
I live in Germany and it will be very dificult to get it , i know a few who have get it but they have contacts in the health care system. They have ME and no signs of heart disease- but the biopsy showed a
myocarditis.
What should i do now ? i read the life expectation its 8 years .
I am pretty sure viruses and bacteria caused this , and they are still causing it.
I stil have hope to get better and maybe do a little gymnastic, to preserve a little my muscles . is this heart problem going to kill me ?
does anybody have here a similar experience?
lots of health and hope for you all.....from Germany
I had 2015 my first severe ME year, with herpes 6 reactivation (was not treated by doctors) ,lots of infections wich took me to the ER here in Germany (where also not taken serious) and the blood tests showed high troponin where i was showing all signs of a myocarditis , also in EKG ( t negative waves, arrithmia, etc ) .
But they didnt think about doing a heartmuscle biopsy in this moment .
Now i have checked with a new doctor my heart echo from last year, where stays :
ventricular right and left hypertrophia ( i google it and this should be cardiomyopathy )
heart valves inssufficiency level 2 ( there are mild, moderate and severe , where you need valve replacement)
Before 2015 my heart was PERFECT
I urgently need a heartmuscle biopsy because i am 100 % sure i have a silent chronic myocarditis wich its producing this problems.
I live in Germany and it will be very dificult to get it , i know a few who have get it but they have contacts in the health care system. They have ME and no signs of heart disease- but the biopsy showed a
myocarditis.
What should i do now ? i read the life expectation its 8 years .
I am pretty sure viruses and bacteria caused this , and they are still causing it.
I stil have hope to get better and maybe do a little gymnastic, to preserve a little my muscles . is this heart problem going to kill me ?
does anybody have here a similar experience?
lots of health and hope for you all.....from Germany
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