Despite Our Losses, People with ME/CFS Want More
We've been cheated by ME/CFS and we all know it. That's a no-brainer, if you'll pardon the cognitive pun. And loss didn't just result from the bad things that befell us. It also encompasses the good things that just ... never came. The absence of bounty. Of wholeness. Of peace.
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Good supportive blog/counter to Dr Borgini/mentions this forum

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by oerganix, Feb 2, 2010.

  1. oerganix

    oerganix Senior Member


    "In My Humble Opinion...

    Until now I've tried to stay out of the debate, preferring to wait until more studies are done to see exactly what the XMRV discovery means to patients. But cruel and extreme comments, like those Dr. Borigini made against very sick patients who are desperate for something that will give them hope, have made me angry enough that I have to speak out."

    I commented in order to praise a positive attitude and effort in our attempt to re-educate the public about this whole mess.
    I think we need to comment on the positive as much as on the negative, or more.
  2. Nina

    Nina Senior Member

    Dito, oerganix, I think the good ones deserve to be commented on even more. I'll leave a comment too! Thanks for bringing this to our attention.

    Edit: I just realized the author is a patient herself, and I had been so excited that someone from the "outside" has had enough of this, too. Nevertheless, it's a great article and we need more of these.
  3. Katie

    Katie Guest

    I have posted, posts like this need our attention, thanks for the heads up.

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