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going by symptoms alone?

Messages
99
Location
London, UK
My second post here, whoop whoop. Hope everyone's having a good day/evening/morning :)

In my first post over in the introduction forum I say I have genetic methylation defects. Although I am yet to be tested, it's pretty clear from my list of diagnoses that I have quite a number of them.

Diagnosed:
Autism
Hashimoto's (auto-immune hypothyroid)
PCOS (polycystic ovarian symdrome)
PoTS (postural tachycardia syndrome)
hypotension
celiac disease
anemia
vit d deficiency
Reynauds
alopecia
migraines with aura
IBS (chronic constipation)
lactose (casein) intolerance
aniphilaxis (peanuts, wasps)
idiopathic eosinophilia
insomnia
clinical depression

Undiagnosed:
-ME/CFS (see first paragraph)
-adrenal fatigue/exhaustion/Addison's (PCP does not take into account the various tests done by private labs which prove low cortisol and abnormally low aldosterone. Some suggest Addison's whilst others just say adrenal fatigue)
-histamitosis
-nightshade intolerance
-fructose intolerance

My question is, is it possible to diagnose yourself on symptoms and diagnosed illnesses alone?

I live in the UK and we have no such genetic testing here. Dr. Yasko (who is my preference for testing) has not replied to my email as to whether she ships abroad, and although 23andme do they do not seem to test for several of the SNPs implicated in my illnesses. If I have no choice but to use 23andme, is it safe to assume that if I'm symptomatic of the SNPs they do not test, I am +/+ or at the very least +/- in those SNPs?

Thanks in advance :)
 

paul80

Senior Member
Messages
298
I'm in UK too and want to get this test done.

I was going to start a thread as i too want to know where the best place for me to get this test is.
 

Sushi

Moderation Resource Albuquerque
Messages
19,935
Location
Albuquerque
oh_noes

I'd say that trying to diagnose ourselves by symptoms could be pretty chancy as so many symptoms overlap many diseases and conditions. I know this is a big problem when you don't have good access to the right testing, but I'd try to get as much testing as you can.

Best wishes,
Sushi
 
Messages
99
Location
London, UK
Thanks for the replies paul80 and Sushi (and Sushi, love your name btw. I'd eat sushi till it came out my ears if I didn't have a horrendous reaction to it).

Fortunately, Dr. Amy Yasko's staff got back to me saying they do ship to the UK, so I ordered her nutrigenomics test. It's expensive but I would honest get further into debt trying to improve my health. So Paul, if you're able or willing to spend around £350, you can get Dr. Amy's test. Otherwise 23andme are good, for the equivalent of £70, but they don't test for as many genes as Dr. Amy's nor do they interpret the results for you.