- Messages
- 26
- Location
- California
FRIENDS,
The email address for Dr. Francis S. Collins, Director of NIH, is Francis.Collins@nih.hhs.gov --- for those
too tired to write, send the composition through a printer, find a stamp, a mailbox ---- it's as easy as
sending an email.
I am always of the point of view that we should always be contacting the powers that be within our
nation's scientific community to encourage them to conduct research on our plight. For want of a better
term, I'll call that "chronic fatigue syndrome," but I believe any communication should debunk the use of that term. Since someone here was making a list of the top CFS researchers (a very short list), I
thought on top of that list should be whomever is running NIH ---- and that person is Francis S. Collins, MD PHD.
For awhile, it appeared he was interested, when he attended a meeting focused on XMRV and sat in the
front row. Has that interest waned because of problems replicating that research? I don't know --- but
still, I believe we should be contacting him. Over a million people are sick with this disease, and, on a
good day, we can name maybe 6 people who are researching this disease! God bless them, but this is
Outrageous!
Important things to know about Dr. Collins:
1. prevously head of the National Human Genome Research Office, involved in announcing a working
draft of the human genome along with rival, Craig Vetner;
2. the recipient of numerous awardeds and honors, including election to the Institute of Medicine, the
National Academy of Sciences, a Kilby International Award, the National Medal of Science (2008);. the
Presidential Medal of Freedom (2007).
He likes to play guitar and started a rock band with other NIH scientists. He likes to ride motorcycles. Dr. Collins has appeared to the Colbert Report at least twice. It would be nice if Steve Colbert interviewed him on what's happening at the agency with respect to Chronic Fatigue Syndrome.
Of note Dr. Collins has penned a book on religion and science, describing science as an "opportunity to
worship."
Dr. Collins is VERY POPULAR WITH THE U.S. CONGRESS, whch is one of the reasons we want to continue to have him on our side.
While there may be others online here who have very sophisticated ideas of what to say and do re: activism -- and I welcome their input --- when I found the contact information for Dr. Collins, I wanted to make sure that the group had the information so that it could be used on a regular basis. We are desperate for science to step in and help solve our problems!
N.B.: If you are ever looking for contact info for an employee at NIH or the CDC, Google HHS and employee, and it will bring up boxes to fill in, which should then bring up their mailing address, telephone, and email address. Information that can frequently be virtually impossible to obtain!
I suggest we all write letters telling Dr. Collins how this disease affects us, and how little research is occurring given the large numbers and disability that it causes.
Best to all,
Chloe
Dr. Collins' contact info:
Last name Collins
First name Francis
Middle name S
Agency NIH
Organization DHHS/NIH/OD
Job title Director NIH
Building 1
Room 126
Duty station Bethesda MD 20892
Phone 301.496.2433
Internet e-mail Francis.Collins@nih.hhs.gov
The email address for Dr. Francis S. Collins, Director of NIH, is Francis.Collins@nih.hhs.gov --- for those
too tired to write, send the composition through a printer, find a stamp, a mailbox ---- it's as easy as
sending an email.
I am always of the point of view that we should always be contacting the powers that be within our
nation's scientific community to encourage them to conduct research on our plight. For want of a better
term, I'll call that "chronic fatigue syndrome," but I believe any communication should debunk the use of that term. Since someone here was making a list of the top CFS researchers (a very short list), I
thought on top of that list should be whomever is running NIH ---- and that person is Francis S. Collins, MD PHD.
For awhile, it appeared he was interested, when he attended a meeting focused on XMRV and sat in the
front row. Has that interest waned because of problems replicating that research? I don't know --- but
still, I believe we should be contacting him. Over a million people are sick with this disease, and, on a
good day, we can name maybe 6 people who are researching this disease! God bless them, but this is
Outrageous!
Important things to know about Dr. Collins:
1. prevously head of the National Human Genome Research Office, involved in announcing a working
draft of the human genome along with rival, Craig Vetner;
2. the recipient of numerous awardeds and honors, including election to the Institute of Medicine, the
National Academy of Sciences, a Kilby International Award, the National Medal of Science (2008);. the
Presidential Medal of Freedom (2007).
He likes to play guitar and started a rock band with other NIH scientists. He likes to ride motorcycles. Dr. Collins has appeared to the Colbert Report at least twice. It would be nice if Steve Colbert interviewed him on what's happening at the agency with respect to Chronic Fatigue Syndrome.
Of note Dr. Collins has penned a book on religion and science, describing science as an "opportunity to
worship."
Dr. Collins is VERY POPULAR WITH THE U.S. CONGRESS, whch is one of the reasons we want to continue to have him on our side.
While there may be others online here who have very sophisticated ideas of what to say and do re: activism -- and I welcome their input --- when I found the contact information for Dr. Collins, I wanted to make sure that the group had the information so that it could be used on a regular basis. We are desperate for science to step in and help solve our problems!
N.B.: If you are ever looking for contact info for an employee at NIH or the CDC, Google HHS and employee, and it will bring up boxes to fill in, which should then bring up their mailing address, telephone, and email address. Information that can frequently be virtually impossible to obtain!
I suggest we all write letters telling Dr. Collins how this disease affects us, and how little research is occurring given the large numbers and disability that it causes.
Best to all,
Chloe
Dr. Collins' contact info:
Last name Collins
First name Francis
Middle name S
Agency NIH
Organization DHHS/NIH/OD
Job title Director NIH
Building 1
Room 126
Duty station Bethesda MD 20892
Phone 301.496.2433
Internet e-mail Francis.Collins@nih.hhs.gov