purrsian
Senior Member
- Messages
- 344
Hi guys, I haven't really posted much on here yet but I'm always scouring these forums for tips, advice etc. I'm having a really hard time right now and I just can't pinpoint why. A basic overview of my illness...
I've never been an especially healthy person, always low on energy even as a child but started to get actually sick about ten years ago. I'm now 29. While I've had ups and downs over the years, the symptoms were mostly fatigue especially post exertional, poor sleep, depression, circulation issues, deficiencies in iron b12 and magnesium. Last year, I was really improving through pacing myself and planning everything. I was doing well enough that I actually considered myself as just deconditioned rather then still sick.
In February, I got the first flu that I've had since getting cfs. It was pretty bad and I had to go on a plane during the worst of it. I was in bad pain during take off and landing and I couldn't hear much out of one ear for a day or two. Since then, I've had sinus problems (no previous history) although the symptoms changed over time. In about April I started taking thyroid tablets for reverse t3 dominance with levels at about 780 - 450 is the highest normal range.
Over the past two months, I no longer have face pain, headaches or nasal issues but I do have a lot of dizziness. I was on singulair allergy tablets for two weeks but stopped them about 3 to 4 weeks ago due to extreme depression, anxiety and dizziness. My latest thyroid results show reverse t3 down to 453 but slightly high thyroxine, so my dose has been dropped last week.
My main concern is that I've only ever had blood tests done to try and find a cause for my long term issues. All of the standard blood panels always come back normal. Are there any kinds of scans or things like endoscopy that could help find something that has been missed? I just can't identify what's gone wrong over the past 6 months - I just seem to keep going downhill further. I was at work with my mum today and had to keep resting as I would sometimes feel suddenly nauseous, dizzy, shaky, clammy and a bit out of it.
I just don't know what to do. I'm struggling with daily life, freaking out over finding xmas presents in time, finding it hard to work one day a week with mum. I was almost well enough to do two days on my own. I just don't know what else I can investigate or ask my doc about, any suggestions or guidance would be appreciated. Sorry this was so long, I'm just so confused about it all.
I've never been an especially healthy person, always low on energy even as a child but started to get actually sick about ten years ago. I'm now 29. While I've had ups and downs over the years, the symptoms were mostly fatigue especially post exertional, poor sleep, depression, circulation issues, deficiencies in iron b12 and magnesium. Last year, I was really improving through pacing myself and planning everything. I was doing well enough that I actually considered myself as just deconditioned rather then still sick.
In February, I got the first flu that I've had since getting cfs. It was pretty bad and I had to go on a plane during the worst of it. I was in bad pain during take off and landing and I couldn't hear much out of one ear for a day or two. Since then, I've had sinus problems (no previous history) although the symptoms changed over time. In about April I started taking thyroid tablets for reverse t3 dominance with levels at about 780 - 450 is the highest normal range.
Over the past two months, I no longer have face pain, headaches or nasal issues but I do have a lot of dizziness. I was on singulair allergy tablets for two weeks but stopped them about 3 to 4 weeks ago due to extreme depression, anxiety and dizziness. My latest thyroid results show reverse t3 down to 453 but slightly high thyroxine, so my dose has been dropped last week.
My main concern is that I've only ever had blood tests done to try and find a cause for my long term issues. All of the standard blood panels always come back normal. Are there any kinds of scans or things like endoscopy that could help find something that has been missed? I just can't identify what's gone wrong over the past 6 months - I just seem to keep going downhill further. I was at work with my mum today and had to keep resting as I would sometimes feel suddenly nauseous, dizzy, shaky, clammy and a bit out of it.
I just don't know what to do. I'm struggling with daily life, freaking out over finding xmas presents in time, finding it hard to work one day a week with mum. I was almost well enough to do two days on my own. I just don't know what else I can investigate or ask my doc about, any suggestions or guidance would be appreciated. Sorry this was so long, I'm just so confused about it all.