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Extreme hunger during parts of a crash/relapse

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by Plum, Aug 31, 2018.

  1. Plum

    Plum Senior Member

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    I'm curious if anyone else experiences this or has an explanation of why this happens:

    Some of my crashes cause me to be very hungry for days at a time. This can happen at any point in the crash, is NOT linked to severity of symptoms and does not happen with every crash/relapse.
    What I experience when I have a crash/relapse is several weeks of worsening symptoms, usually lasting 6-8 weeks and not always returning to the level of activity I had prior to the crash/relapse.

    I eat pretty much the same meals on rotation and so I know what I usually consume. When going through these periods it seems to come out of nowhere. I'll be nicely full after a meal and then a few hours later (earlier than normal), I am starving and my symptoms are WAY worse. This is not related to blood sugar as I'm on a low carb diet and test regularly. I usually just get hungry between meals and if I want to wait til my next meal, there is no worsening of symptoms. But right now I feel like I'll do anything for something to eat and it drives me a bit nuts especially as I don't have the energy to keep getting meals!

    Any ideas what's going on?
     
    Mel9 likes this.
  2. Seven (formerly lnester7)

    Seven (formerly lnester7) Seven

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    I had the same issue ( in a really bad way) I need about double to triple calories during crash, it is as if my body is only able to produce calories of new food and unable from stored fat. I gained about 50pounds giving in ( becuase it lessens the crash).
    So I looked for a new way. I am trying low carb w high fat ( the high fat is the important part) and the extreme constant hunger has gone away. I definitely do not process carbs well.

    I don’t know if it is the mct oil itself or being close to keto ( I avoid full keto becuase I get the keto rash) but that has eliminated the crazy hunger ( sorry if this is too much info but my other appetites increases too) so I know is a hormonal all over the place thing.

    My husband makes fun of me becuase I can nearly move and I start winking at him and asking for chocolate :)
     
    Plum likes this.
  3. snowman

    snowman

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    I get periods of extreme appetite from time to time like that, but I distinguish between hunger and appetite - feeling hunger in the stomach grumbling feeling empty sense and feeling a huge appetite as in craving food and huge appetite even after big meals while still full. If it's hunger, I'm usually satisfied by food. If it's abnormal appetite, I think of several possibilities and try things that may help them. 1. critters or flora imbalance in GI system releasing some chemicals to increase appetite, tried things like iodine, ginger, turmeric, probiotics, avoiding sugar including fruit for several days. 2. nutrient insufficiencies possibly lowering dopamine, tried high dose B1 or iron or magnesium chloride or zinc or turmeric. If on really high dose zinc for a couple of months, it might increase appetite whereas initially it may decrease appetite. 3. thyroid hormones possibly off, tested and adjusted that. 4. not absorbing some nutrients well thus craving variety of foods, checked pancreatic and bile issues and supplemented accordingly. 5. some sort of weird hypothalamus thing or metabolic thing going on, no idea. tried miscellaneous things that can reduce appetite or aid in brain energy such as high dose B1, high dose biotin, theanine, bit of caffeine. 6. orthostatic intolerance may affect appetite/cravings, don't ask me why, maybe not enough circulation getting to places in brain that regulate ghrelin and other appetite hormones. Tried seeing if laying flat 1/2 hour reduces appetite and sitting up for a bit increases it. 7. If take too many methyl supplements I get huge appetite, tried cutting those and adding niacinamide. No other ideas at the moment.
     
    Plum likes this.
  4. ChrisD

    ChrisD Senior Member

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    Whether on a standard diet, Paleo or Keto, as long as I have had ME/CFS, I have always needed to consume almost double or triple the calories after exertion or when in a crash, I rarely struggle with appetite. Not ideal when you are not able to work to bring in income to afford 2-3x the food you would usually eat!
     
    CreativeB and Plum like this.
  5. Plum

    Plum Senior Member

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    Do you find eating that much has any benefit on symptoms or duration of crash?

    @snowman some very interesting points raised - thank you. I keep meaning to get tested for certain deficiencies and the orthostatic intolerance is something I will look out for.
     
  6. JinZ

    JinZ

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    Vegan, same issue. Prior to crash start to eat crazy amount of oreos :(
     
  7. ChrisD

    ChrisD Senior Member

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    @Plum Yes I find that amount will help me recover to my 'illness baseline' and it will shorten the crash compared to if I don't satisfy that hunger.

    @JinZ Are you an ethical vegan or for health reasons? because in my personal opinion it's really going to hinder recovery from ME/CFS and especially Oreos which will spike your blood sugar hard disrupt hormones etc. I know you won't want to hear it but I mean it for the best
    - People with ME generally do better on a Paleo Ketogenic diet than plant based which is lacking a lot of nutrients, however some people do seem to thrive on high carb and medical medium etc. too.
     
    Plum likes this.

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