When the 'Holiday Season' Is No Holiday at all for Those With ME/CFS
Is December getting to you? Jody Smith shares some thoughts on some of the struggles that all too often attend this time of year ...
Discuss the article on the Forums.

Esther Crawley TEDxBristol Disrupting Your View Of ME

Discussion in 'General ME/CFS News' started by JamBob, Oct 25, 2017.

  1. Keela Too

    Keela Too Sally Burch

    Messages:
    900
    Likes:
    3,992
    N.Ireland
  2. Jo Best

    Jo Best Senior Member

    Messages:
    1,032
    Likes:
    6,231
    Thanks Sally.
     
    ladycatlover likes this.
  3. Dechi

    Dechi Senior Member

    Messages:
    1,124
    Likes:
    2,143
    I don’t know Esther Crawley. Can someone explain in 2-3 sentences what the problem is with her ? Thanks
     
  4. Solstice

    Solstice Senior Member

    Messages:
    641
    Likes:
    2,115
    Her science resides mostly in the made-up and get's people with ME sicker, which is worse cause she mostly targets kids. When kids don't improve they get the blame and get an alternative diagnosis. She get's mad and smears patients when she's confronted about it.
     
  5. Large Donner

    Large Donner Senior Member

    Messages:
    866
    Likes:
    3,865
    She's like Wessely without the pretending to be retired from ME bit.
     
  6. Large Donner

    Large Donner Senior Member

    Messages:
    866
    Likes:
    3,865
    Oh ye and she is a peadiatrician and threatens families with social services etc if their kids don't recover by standing on pieces of magic paper whilst chanting stop at their ME symptoms. At which point she re diagnoses them with Pervasive Refusal Syndrome.

    She also goes around telling audiences that she was sent a threatening email which was actually just a made up piece of art work for the Sunday Times, that only truly existed in the imagination of the artist who designed it.

    Somehow despite all this and hosting a talk called "a day with the muppets", relating to children with ME, she is deputy head of the Chronic fatigue syndrome/ME Medical Research Council.

    Ye you couldn't make it up, and I didn't.
     
  7. Dechi

    Dechi Senior Member

    Messages:
    1,124
    Likes:
    2,143
    ladycatlover likes this.
  8. Countrygirl

    Countrygirl Senior Member

    Messages:
    3,812
    Likes:
    19,803
    UK
    She also to my knowledge was involved with seizing a child who failed to recover from her mother and forced her to endure vigorous physiotherapy for several days as an inpatient. As a result the child was left paralysed and was dumped on the mother while EC washed her hands of her and took no responsibility for the devastating harm she had inflicted on the child and family.
     
    Skycloud, ash0787, MEMum and 2 others like this.
  9. char47

    char47 Senior Member

    Messages:
    148
    Likes:
    692
    :eek::cry::mad:
     
  10. Alvin2

    Alvin2 If humans were rational...

    Messages:
    1,334
    Likes:
    3,744
    I hope there was a lawsuit and lifetime care compensation involved.
     
    Countrygirl and ladycatlover like this.
  11. Large Donner

    Large Donner Senior Member

    Messages:
    866
    Likes:
    3,865
    No there wasn't but don't rule out a knighthood anytime soon.
     
    ukxmrv, ladycatlover and Joh like this.
  12. Alvin2

    Alvin2 If humans were rational...

    Messages:
    1,334
    Likes:
    3,744
    Anyone who causes that sort of harm doesn't deserve to not be sued, she should lose her medical license and maybe face jail time. Paralyzing a child is a criminal level offense [no suitable emoticon available]
     
  13. AR68

    AR68

    Messages:
    34
    Likes:
    343
    I would very much like to know whether you receive an answer to this or not. I have tweeted @TedXBristol more than once recently to point out the misuse of an image by Esther Crawley and to request contact details for someone to complain to. TXB have, as yet, failed to reply and I'm not expecting them to. I believe that Ted itself is more 'contactable' but since TX is an offshoot, there seems to be little accountability.
     
    Skycloud, MEMum, Countrygirl and 2 others like this.
  14. ukxmrv

    ukxmrv Senior Member

    Messages:
    4,375
    Likes:
    4,510
    London
    I sent am email to the info@ address and have a reply to say it was received but that's it so far.
     
    ladycatlover and Countrygirl like this.
  15. Countrygirl

    Countrygirl Senior Member

    Messages:
    3,812
    Likes:
    19,803
    UK
    No. Nothing. No action to be taken. Of course. Despite complaints to the relevant body.

    When you do the Establishment's bidding you are awarded a damehood.
     
    MEMum and ladycatlover like this.
  16. Deepwater

    Deepwater Senior Member

    Messages:
    192
    Likes:
    987
    What you have to remember is that the Establishment has not believed ME is a real illness - it is something imagined by the patient. So when the patient becomes worse or paralysed, that is not real either and nobody needs to be punished for it except the patient.
     
    Skycloud, anni66, char47 and 3 others like this.
  17. J.G

    J.G

    Messages:
    94
    Likes:
    353
    Ugh, her bio is positively appalling. Positioning herself as the patients' messiah and lashing out at critics all in the space of two paragraphs - how does TEDx permit such obviously partisan nonsense to deface their pages? Don't they background-check their speakers? Or does Crawley somehow have the inside track? I sure hope not.

    For what it's worth, I've written TED's press department to protest against the bio. I doubt I'll receive a response, but if I do, I'll post it here.
     
  18. AR68

    AR68

    Messages:
    34
    Likes:
    343
    I still have not received a reply, over Twitter, from TedX Bristol. I don't expect one but it will underline (to me) that they appear to be unaccountable and are merely interested in being 'controversial' for the sake of it.

    I will pursue this.
     
    Countrygirl, Skycloud, MEMum and 2 others like this.
  19. J.G

    J.G

    Messages:
    94
    Likes:
    353
    Update: no reply. None expected at this point.
     
    Last edited: Nov 17, 2017
    ladycatlover, Countrygirl and Molly98 like this.
  20. Countrygirl

    Countrygirl Senior Member

    Messages:
    3,812
    Likes:
    19,803
    UK
    I have just posted a thread on EC's talk under the heading of Mood Disorders (!) where she is talking on paediatric CFS and new research on adult ME on Friday at Exeter University at noon until 1 pm. It is open to all I think.

    Anyone like to attend?
     
    MEMum and ladycatlover like this.

See more popular forum discussions.

Share This Page