Jenny TipsforME
Senior Member
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- Bristol
@Countrygirl Well we're desperately in need of some good news, even it is more of a good laugh rather than a major breakthrough!
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Embargo broken: Bristol University Professor to discuss trial of quack cfs tx
- Thread starter Kati
- Start date
Agreed, but it's the approach I would expect. Test something that is clear quackery with no effect at all and you're open to criticism that the trial should never have taken place. Show a little effect (less than your preferred brand of GET, of course) and you can use the dodgy defence of "well, it was worth a shot".
Cheshire
Senior Member
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- 1,129
Well, David Marks seems particularly upset. Here are some more
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alex3619
Senior Member
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- Logan, Queensland, Australia
If I had to use a rhyme or say stop every time I had symptoms I would have severe PEM from doing that, and a sore throat to boot.
Large Donner
Senior Member
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- 866
There actually is no such thing as a school leaving age. School is just a club you agree to attend you can deregister at ANY time with a simple letter to the head teacher telling him the name of the child and you wish the child taken off the register. A child's education is the responsibility of the parent, by means of state, private or home education. You actually opt into state education if you send kids to state school, there is ZERO legal obligation ever to do this.
http://home-ed.info/home_education_deregistration
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trishrhymes
Senior Member
- Messages
- 2,158
Every day in every way I'm getting crosser and crosser
Every day we hear more crap from that criminal LP tosser.
Will that do, @TiredSam ?
From Tired Trish
Every day we hear more crap from that criminal LP tosser.
Will that do, @TiredSam ?
From Tired Trish
Very nicely. Let me know when you're feeling better.
slysaint
Senior Member
- Messages
- 2,125
OHC uses similar 'techniques' to LP ('stops' etc) so they will probably also be watching with interest........
I'm not saying you're wrong in that they could well come up with something so ridiculous, but that would play nicely into 'our' hands because everyone else in the scientific community could also see how ridiculous it is too. Short of them coming out and admitting 'mea culpa, it's a quack therapy, our cohorts were **** and we shouldn't have exposed children to it at all, it's an unethical, statistical nonsense' whatever they say will be used against them. But they are so stupid, and so lacking in imagination I suspect your analysis of the situation could well be on the money. It just won't play.
Dx Revision Watch
Suzy Chapman Owner of Dx Revision Watch
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- UK
Thank you, I am well aware of that.
The point being: if you have a child on the school register who is not attending school then the Education Welfare Officer/School welfare officer/school attendance officer is involved.
Therefore the school leaving age has some relevance - if the family isn't considering taking their daughter off the school register in order to home educate.
I don't know, but she may also be in receipt of home tuition provided by the Scottish equivalent of the LEA. Or she may be attempting to continue with the school's syllabus for examinations and receiving assistance from the school's teachers with this.
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Thanks but too far. I've forwarded suggestions frm here so will see what happens
Thanks to all who responded x
I realize that this discussion was about Scotland, but in general, that depends on the country. In Germany there is actually compolsory school attendance, a legal obligation that kids have to go to school. No exeptions are made, e.g. religious groups who want to homeschool have to leave the country. Parents can get money fines, lose custody and even be sent to jail and kids can be collected by police and brought to school. That's another problem for parents of kids with ME here, if the diagnosis ME is not accepted.
Our school are trying to he as supportive as they can. I did complain about a few issues and the " quality improvement officer" got involved - she was originally a biochemist who understands things better than medics ( sad but true) so they gave not pushed the formal attendance button. I' ve had a productive meeting this morning re gradual return when able and potentially piloting virtual education ( not available in Scotland) for kids with chronic illness. It' s mainly the medical side which is frustrating and disappointing.
Dx Revision Watch
Suzy Chapman Owner of Dx Revision Watch
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- UK
@Large Donner
In our situation (19 years ago), our son received four years of home tuition provided by the LEA, supplemented by tuition in two additional subjects delivered for two years by me. Provision of home tuition had the continued support of the hospital senior paediatric registrar, the school's head and the EWO.
Had this not been the case, we would have taken him off the school register and home educated.
In our situation (19 years ago), our son received four years of home tuition provided by the LEA, supplemented by tuition in two additional subjects delivered for two years by me. Provision of home tuition had the continued support of the hospital senior paediatric registrar, the school's head and the EWO.
Had this not been the case, we would have taken him off the school register and home educated.
Here, home tuition is done by teachers who volunteer and can be limited to maths and english. Problems occur when your child cannot regularly participate. It' s also discretionary after age 16, so if your child has too many " labels" attached it may be pulled.