Thank you for your quick attention to this matter.
Sincerely,
Dharam V. Ablashi, DVM, MS, Dip Bact
Scientific Director
HHV-6 Foundation
Santa Barbara, California, USA
Former Senior Investigator
National Cancer Institute
National Institutes of Health
Bethesda, Maryland, USA
Lisa Alioto, JD
Vice President
Minnesota ME/CFS Alliance
Edina, Minnesota, USA
Michael Allen, PhD
Clinical Psychologist (retired)
San Francisco, California, USA
Christopher Armstrong, PhD
Bio21 Molecular Science & Biotechnology Institute
Department of Biochemistry and Molecular Biology
University of Melbourne
Melbourne, Victoria, Australia
James N. Baraniuk, MD
Professor of Medicine
Georgetown University
Washington, DC, USA
Lisa F. Barcellos, PhD
Professor of Epidemiology
School of Public Health
California Institute for Quantitative Biosciences
University of California, Berkeley
Berkeley, California, USA
Lucinda Bateman, MD
Medical Director
Bateman Horne Center
Salt Lake City, Utah, USA
Alison C. Bested, MD, FRCPC
Clinical Associate Professor
Faculty of Medicine
University of British Columbia
Vancouver, British Columbia, Canada
Charlotte Blease, PhD
Fulbright and Marie Curie Research Fellow
General Medicine and Primary Care
Beth Israel Deaconess Medical Center
Harvard Medical School
Boston, Massachusetts, USA
Molly Brown, PhD
Assistant Professor
Department of Psychology
DePaul University
Chicago, Illinois, USA
Robin Callender Smith, PhD
Professor of Media Law
Centre for Commercial Law Studies
Queen Mary University of London
Barrister and Information Rights Judge
London, England, UK
John Chia, MD
Physician and Researcher
EV Med Research
Lomita, California, USA
Lily Chu, MD, MSHS
Independent Researcher
Burlingame, California, USA
Barbara Comerford, JD
Attorney in Private practice
Specialist in Disability Law
Paramus, New Jersey, USA
Joan Crawford, CPsychol, CEng, CSci, MA, MSc
Chartered Counselling Psychologist
Chronic Pain Management Service
St Helens Hospital
St Helens, England, UK
Janet L Dafoe, PhD
Child Psychologist in Private Practice
Palo Alto, California, USA
Todd E. Davenport, PT, DPT, MPH, OCS
Professor and Program Director
Department of Physical Therapy
Thomas J. Long School of Pharmacy & Health Sciences
University of the Pacific
Stockton, California, USA
Workwell Foundation
Ripon, California, USA
Ronald W. Davis, PhD
Professor of Biochemistry and Genetics
Stanford University
Stanford, California, USA
Lucy Dechene, PhD
Professor of Mathematics (retired)
Fitchburg State University
Fitchburg, Massachusetts, USA
Simon Duffy, PhD, FRSA
Director
Centre for Welfare Reform
Sheffield, England, UK
Jonathan C.W. Edwards, MD
Emeritus Professor of Medicine
University College London
London, England, UK
Valerie Eliot Smith
Barrister and Visiting Scholar
Centre for Commercial Law Studies
Queen Mary University of London
London, England, UK
Derek Enlander, MD
Clinician in private practice
New York, New York, USA
Meredyth Evans, PhD
Clinical Psychologist and Researcher
Chicago, Illinois, USA
W.A. Faas, MD, LL.M
Insurance Physician
Researcher, Vrije Universiteit Amsterdam
Amsterdam, The Netherlands
Margaret C. Fernald, PhD
Clinical Associate
Department of Psychology
University of Maine
Orono, Maine, USA
Mary Ann Fletcher, PhD
Schemel Professor of NeuroImmune Medicine
Nova Southeastern University
Professor Emeritus
University of Miami School of Medicine
Fort Lauderdale, Florida, USA
Kenneth J. Friedman, PhD
Associate Professor of Physiology and Pharmacology (retired)
New Jersey Medical School
University of Medicine and Dentistry of New Jersey
Newark, New Jersey, USA
Robert F. Garry, PhD
Professor of Microbiology and Immunology
Tulane University School of Medicine
New Orleans, Louisiana, USA
Keith Geraghty, MPH, PhD
Honorary Research Fellow
Division of Population Health, Health Services Research & Primary Care
School of Health Sciences
University of Manchester
Manchester, England, UK
Simin Ghatineh, MSc, PhD
Biochemist
London, England, UK
Ian Gibson, PhD
Former Member of Parliament for Norwich North
Former Dean, School of Biological Sciences
University of East Anglia
Honorary Senior Lecturer and Associate Tutor
Norwich Medical School
University of East Anglia
Norwich, England, UK
Claudia Gillberg, PhD
Fellow, Centre for Welfare Reform
Sheffield, England, UK
Senior Research Associate
National Centre for Lifelong Learning
Jonkoping University
Jonkoping, Sweden
Mike Godwin, JD
Attorney and Author
Distinguished Senior Fellow
R Street Institute
Washington, DC, USA
Rebecca Goldin, PhD
Professor of Mathematics
George Mason University
Fairfax, Virginia, USA
Alan Gurwitt, MD
Clinician in Private Practice (retired)
Associate Clinical Professor
Yale Child Study Center (retired)
New Haven, Connecticut, USA
Associate Clinical Professor
University of Connecticut Dept of Psychiatry (retired)
Storrs, Connecticut, USA
Lecturer, Harvard Medical School (retired)
Boston, Massachusetts, USA
Geoffrey Hallmann, LLB, DipLegPrac
Specialist in Disability and Compensation Law (retired)
Lismore, New South Wales, Australia
Maureen Hanson, PhD
Liberty Hyde Bailey Professor
Department of Molecular Biology and Genetics
Cornell University
Ithaca, New York, USA
Malcolm Hooper, PhD, BPharm, MRIC, CChem
Emeritus Professor of Medicinal Chemistry
University of Sunderland
Tyne and Wear, England, UK
Leonard A. Jason, PhD
Professor of Psychology
DePaul University
Chicago, Illinois, USA
Daniel Kahn, MD
Professor of Radiology
Carver College of Medicine
University of Iowa Health Care
Chief, Nuclear Medicine Section
Iowa City Veteran’s Affairs Medical Center
Iowa City, Iowa, USA
Michael W. Kahn, MD
Assistant Professor of Psychiatry
Harvard Medical School
Boston, Massachusetts, USA
Keith Kahn-Harris, PhD
Associate Lecturer in Sociology
Birkbeck, University of London
London, England, UK
Jon D. Kaiser, MD
Clinical Faculty
Department of Medicine
University of California, San Francisco
San Francisco, California, USA
David L. Kaufman, MD
Center for Complex Diseases
Mountain View, California
Member, The ME/CFS Collaborative Research Center at Stanford
Palo Alto, California, USA
Betsy Keller, PhD, FACSM
Professor of Exercise & Sport Sciences
Ithaca College
Ithaca, New York, USA
Nancy Klimas MD
Director, Institute for Neuro-Immune Medicine
Nova Southeastern University
Director, Miami VA Medical Center GWI and CFS/ME Program
Miami, Florida, USA
Andreas M. Kogelnik, MD, PhD
Director
Open Medicine Institute
Mountain View, California, USA
Anthony L. Komaroff, MD
Simcox-Clifford-Higby Distinguished Professor of Medicine
Harvard Medical School
Senior Physician
Brigham and Women’s Hospital
Boston, Massachusetts, USA
Richard Kwiatek, MBBS, FRACP
Rheumatologist and Independent Researcher
Northern Adelaide Local Health Network
Adelaide, South Australia, Australia
Eliana M. Lacerda, MD, MSc, PhD
Clinical Assistant Professor
International Centre for Evidence in Disability
Faculty of Infectious and Tropical Diseases
London School of Hygiene & Tropical Medicine
London, England, UK
Charles W. Lapp, MD
Medical Director
Hunter-Hopkins Center
Charlotte, North Carolina, USA
Keith R. Laws, PhD
Professor of Neurocognitive Psychology
School of Psychology
University of Hertfordshire.
Hertfordshire, England, UK
Bruce Levin, PhD
Professor of Biostatistics
Columbia University
New York, New York, USA
Donald Lewis, MBBS, FRACGP, DRACOG
Medical Director
CFS Discovery
Melbourne, Victoria, Australia
Alan R. Light, PhD
Professor of Anesthesiology
Professor of Neurobiology and Anatomy
University of Utah
Salt Lake City, Utah, USA
Vincent C. Lombardi, PhD
Director of Research
Nevada Center for Biomedical Research
Reno, Nevada, USA
Rogier Louwen, PhD
Assistant Professor
Department of Medical Microbiology and Infectious Diseases
Erasmus University Medical Center
Rotterdam, The Netherlands
Alex Lubet, PhD
Professor of Music
Head, Interdisciplinary Graduate Group in Disability Studies
Affiliate Faculty, Center for Bioethics
Affiliate Faculty, Center for Cognitive Sciences
University of Minnesota
Minneapolis, Minnesota, USA
Steven Lubet, JD
Williams Memorial Professor of Law
Northwestern University Pritzker School of Law
Chicago, Illinois, USA
Kristin Luker
Professor of Sociology Emerita
Professor of Law Emerita
Founding Director, Center on Reproductive Rights and Justice
University of California, Berkeley
Berkeley, California, USA
Darren Lynch, MD
Northampton Integrative Medicine
Northampton, Massachusetts, USA
Countess of Mar
House of Lords
Chair, Forward-ME
London, England, UK
David F. Marks, PhD
Editor
Journal of Health Psychology
& Health Psychology Open
London, England, UK
Sonya Marshall-Gradisnik, PhD
Professor of Immunology
Co-Director, National Centre for Neuroimmunology and Emerging Diseases
Griffith University
Gold Coast, Queensland, Australia
Marlon Maus, MD, DrPH, FACS
DrPH Program Director
School of Public Health
University of California, Berkeley
Berkeley, California, USA
Neil R McGregor, BDS, MDSc, PhD
Clinical Associate Professor
Faculty of Medicine, Dentistry and Health Sciences
Bio21 Molecular Science & Biotechnology Institute
University of Melbourne.
Melbourne, Victoria, Australia
Patrick E. McKnight, PhD
Professor of Psychology
George Mason University
Fairfax, Virginia, USA
Marvin S. Medow, PhD
Professor of Pediatrics and Physiology
Chairman, New York Medical College IRB
Associate Director of The Center for Hypotension
New York Medical College
Hawthorne, New York, USA
Peter G. Medveczky, MD
Professor of Molecular Medicine
Morsani College of Medicine
University of South Florida
Tampa, Florida, USA
Jose G. Montoya, MD, FACP, FIDSA
Professor of Medicine
Division of Infectious Diseases and Geographic Medicine
Stanford University School of Medicine
Stanford, California, USA
Director, Palo Alto Medical Foundation Toxoplasma Serology Laboratory
National Reference Center for the Study and Diagnosis of Toxoplasmosis
Palo Alto, California, USA
Sarah Myhill, MBBS
Clinician in Private Practice
Knighton, Wales, UK
Luis Nacul, MD, PhD
Clinical Associate Professor
International Centre for Evidence in Disability
Faculty of Infectious and Tropical Diseases
London School of Hygiene & Tropical Medicine
London, England, UK
Zaher Nahle, PhD, MPA
Executive Director
Arthritis National Research Foundation
Long Beach, California, USA
Heidi Nicholl, PhD
Chief Executive Officer
Emerge Australia
Melbourne, Victoria, Australia
James M. Oleske, MD, MPH
François-Xavier Bagnoud Professor of Pediatrics
Senator of RBHS Research Centers, Bureaus, and Institutes
Director of Division of Pediatrics Allergy, Immunology & Infectious Diseases
Department of Pediatrics
Rutgers New Jersey Medical School
Newark, New Jersey, USA
Elisa Oltra, PhD
Professor of Molecular and Cellular Biology
Catholic University of Valencia School of Medicine
Valencia, Spain
Nigel Paneth, MD, MPH
University Distinguished Professor
Department of Epidemiology & Biostatistics
Department of Pediatrics & Human Development
College of Human Medicine
Michigan State University
East Lansing, Michigan, USA
Richard Podell, MD, MPH
Clinical Professor, Department of Family Medicine
Rutgers-Robert Wood Johnson Medical School
New Brunswick, New Jersey, USA
Nicole Porter, PhD
Psychologist in Private Practice
Rolling Ground, Wisconsin, USA
Vincent R. Racaniello, PhD
Professor of Microbiology and Immunology
Columbia University
New York, New York, USA
Arthur L. Reingold, MD
Professor of Epidemiology
University of California, Berkeley
Berkeley, California, USA
Peter C. Rowe, MD
Professor of Pediatrics
Johns Hopkins University School of Medicine
Baltimore, Maryland, USA
Michael Scott, PhD
Clinician and Researcher
Psychological Therapies Unit
Liverpool, England, UK
Sarah Selke, MB BCh BAO, CCFP
Staff Physician
Environmental Health Clinic
Women’s College Hospital
Toronto, Ontario
Charles Shepherd, MBBS
Honorary Medical Adviser to the ME Association
Buckingham, England, UK
Christopher R. Snell, PhD
Scientific Director
WorkWell Foundation
Ripon, California, USA
Nigel Speight, MA, MB BChir, FRCP, FRCPCH, DCH
Pediatrician
Durham, England, UK
Maryann Spurgin, PhD
Philosophy and Classics (retired)
Current medical writer
Shreveport, Louisiana, USA
Donald R. Staines, MBBS, MPH, FAFPHM, FAFOEM
Clinical Professor
Menzies Health Institute Queensland
Co-Director
National Centre for Neuroimmunology and Emerging Diseases
Griffith University
Gold Coast, Queensland, Australia
Philip B. Stark, PhD
Professor of Statistics
University of California, Berkeley
Berkeley, California, USA
Eleanor Stein, MD, FRCP(C)
Psychiatrist in Private Practice
Assistant Clinical Professor
University of Calgary
Calgary, Alberta, Canada
Staci Stevens, MA
Exercise Physiologist
Founder, Workwell Foundation
Ripon, California, USA
Julian Stewart, MD, PhD
Professor of Pediatrics, Physiology and Medicine
Associate Chairman for Patient Oriented Research
Director, Center for Hypotension
New York Medical College
Hawthorne, New York, USA
Leonie Sugarman, PhD
Emeritus Associate Professor of Applied Psychology
University of Cumbria
Carlisle, England, UK
John Swartzberg, MD
Clinical Professor Emeritus
School of Public Health
University of California, Berkeley
Berkeley, California, USA
Ronald G. Tompkins, MD, ScD
Summer M Redstone Professor of Surgery
Harvard Medical School
Boston, Massachusetts, USA
Barbara True, MD, FRACP
Private Practice
Wakefield Rheumatology
Adelaide, South Australia, Australia
Samuel Tucker, MD
Assistant Clinical Professor of Psychiatry (retired)
University of California, San Francisco
San Francisco, California, USA
David Tuller, DrPH
Senior Fellow in Public Health and Journalism
Center for Global Public Health
School of Public Health
University of California, Berkeley
Berkeley, California, USA
Rosemary A. Underhill, MBBS, MRCOG, FRCSE
Physician, Independent Researcher
Palm Coast, Florida, USA
Derya Unutmaz, MD
Professor
The Jackson Laboratory for Genomic Medicine
Farmington, Connecticut, USA
A.M. Uyttersprot, MD
Neuropsychiatrist
AZ Jan Portaels
Vilvoorde, Belgium
Rosamund Vallings, MNZM, MBBS
General Practitioner
Auckland, New Zealand
Linda van Campen, MD
Cardiologist
Stichting Cardiozorg
Hoofddorp, The Netherlands
Mark VanNess, PhD
Professor of Health, Exercise & Sports Sciences
University of the Pacific
Stockton, California, USA
Workwell Foundation
Ripon, California, USA
Mark Vink, MD
Family Physician
Soerabaja Research Center
Amsterdam, The Netherlands
Frans Visser, MD
Cardiologist
Stichting Cardiozorg
Hoofddorp, The Netherlands
Tony Ward, MA (Hons), PhD, DipClinPsyc
Registered Clinical Psychologist
Professor of Clinical Psychology
School of Psychology
Victoria University of Wellington
Wellington, New Zealand
Adjunct Professor, School of Psychology
University of Birmingham
Birmingham, England, UK
Adjunct Professor, School of Psychology
University of Kent
Canterbury, England, UK
William Weir, FRCP
Infectious Disease Consultant
London, England, UK
John Whiting, MD
Specialist Physician in Private Practice
Brisbane, Queensland, Australia
Sadie Whittaker, PhD
Chief Scientific Officer
Solve ME/CFS Initiative
Los Angeles, California, USA
Carolyn Wilshire, PhD
Senior Lecturer
School of Psychology
Victoria University of Wellington
Wellington, New Zealand
Marcie Zinn, PhD
Cognitive Neuroscience and Data Science
Center for Community Research
DePaul University
Chicago, Illinois, USA
Associate Editor, BMC Journal of Translational Medicine
__________
Members of Parliament
Sir Edward Davey MP
Kingston and Surbiton, England, UK
David Drew MP
Stroud, England, UK
Patricia Gibson MP
North Ayrshire and Arran, Scotland, UK
Mary Glindon MP
North Tyneside, England, UK
Sandy Martin MP
Ipswich, England, UK
Carol Monaghan MP
Glasgow North West, Scotland, UK
Nicky Morgan MP
Loughborough, England, UK
Alex Sobel MP
Leeds North West, England, UK
Graham Stringer MP
Blackley and Broughton, England, UK
Stephen Timms MP
East Ham, England, UK
__________
Patient/Advocacy Organizations
25% ME GROUP
Support for severe ME sufferers
UK
Action CND
Canada
Action for ME
UK
American ME and CFS Society
USA
Associated New Zealand ME Society
New Zealand
Bury and Bolton ME/CFS & Fibromyalgia Support Group
UK
Chester MESH (ME self-help) group
Chester, UK
Dr Sarah Myhill’s MAIMES [Medical Abuse In ME Sufferers] Campaign
UK
Emerge Australia
Australia
European ME Alliance:
Belgium ME/CFS Association
Belgium
Research ME-CFS.CZ
Czech Republic
ME Foreningen
Denmark
Suomen CFS-Yhdistys
Finland
Fatigatio e.V.
Germany
Het Alternatief
Netherlands
Hope 4 ME & Fibro Northern Ireland
UK
Icelandic ME Association
Iceland
Irish ME Trust
Ireland
Associazione CFS Onlus-Veneto
Italy
Norges ME-forening
Norway
Liga SFC
Spain
Riksföreningen för ME-patienter
Sweden
Verein ME/CFS Schweiz
Switzerland
Invest in ME Research
UK
German Association for ME/CFS
Deutsche Gesellschaft für ME/CFS e.V.
Germany
Group ME – The Hague/Dutch Citizens’ Initiative Recognize ME
The Netherlands
Irish ME/CFS Association
Ireland
Leeds ME Network
UK
Lost Voices Stiftung (Fondation)
Hannover/ Germany
Massachusetts CFIDS/ME & FM Association
USA
#MEAction Network:
#MEAction USA
#MEAction UK
#MEAction Scotland
#MEAction Australia
ME Advocates Ireland
Ireland
ME Association
UK
ME North East
UK
ME Research UK
UK
ME Victoria
Canada
ME/CFS (Australia) Ltd
Australia
ME/CFS and Lyme Association of WA, Inc.
Australia
ME/CFS Australia (SA), Inc.
Australia
ME/CVS Stichting Nederland
Netherlands
ME/CVS Vereniging
Netherlands
ME/FM Myalgic Encephalomyelitis and Fibromyalgia Society of British Columbia
Canada
Millions Missing Canada
Canada
Minnesota ME/CFS Alliance
USA
National CFIDS Foundation, Inc.
USA
National ME/FM Action Network
Canada
New Jersey ME/CFS Association, Inc.
USA
Norfolk & Suffolk ME Patient/Carer Group
UK
North London ME Network
UK
Nottingham ME Support Group
UK
OMEGA (Oxfordshire ME Group for Action)
UK
Open Medicine Foundation
USA
Pandora Org
USA
Phoenix Rising
International membership representing many countries
Research ME-CFS.CZ
Czech Republic
Science For ME
International membership representing many countries
Sheffield ME and Fibromyalgia Group
UK
Simmaron Research Foundation
USA
Solve ME/CFS Initiative
USA
Steungroep ME en Arbeidsongeschiktheid
The Netherlands
Suomen lääketieteellinen ME/CFS-yhdistys ry
Finland
Tymes Trust (The Young ME Sufferers Trust)
UK
Wake-Up Call Beweging vzw (movement)
Belgium
WAMES (Welsh Association of ME & CFS Support)
Wales, UK
Wisconsin ME and CFS Association
USA
York ME Community
UK
