A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London ...
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DeSalvo on Data Sharing

Discussion in 'Other Health News and Research' started by JaimeS, Jul 28, 2016.

  1. JaimeS

    JaimeS Senior Member

    Silicon Valley, CA

    Very interesting -- DeSalvo is the Acting Assistant Secretary for HHS in the US -- a pretty high-up position, despite the 'acting' and 'assistant' in the title. ;)

  2. Richard7

    Richard7 Senior Member

    @JaimeS I do not know anything about the local healthcare system and politics around it, but the article seems to be about institutions sharing patient reccords.
  3. undiagnosed

    undiagnosed Senior Member

    United States
    While I think it is undoubtedly good that there is an effort improve interoperability, I'm not sure this approach will be widely adopted; at least not in the near future. I looked into it a bit and this was primarily dealing with open interfaces for sharing electronic health records between providers and patients in the form of FHIR (Fast Health Interoperability Resources) based apps. The government has a national objective to achieve health data interoperability by the end of 2018. I'm not sure what the metrics for meeting that goal are, but it will be a ways off in any case. In addition, I'm not sure how the data will be accessed and what restrictions may be placed on it. I would just like to remind everyone of grassroots efforts here for sharing data where patients are in complete control of the data. For anyone who hasn't seen the threads, you can find out more here and here if you'd like to get involved.

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