The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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dementia and severe brain problems

Discussion in 'General ME/CFS Discussion' started by amaru7, Apr 22, 2014.

  1. SDSue

    SDSue Southeast

    Because vascular type dementia is essentially reduced blood flow to the brain, albeit from a different mechanism, it makes sense that our "dementia" would be eerily similar, but of a milder and reversible form.
    Hmmm. I'm not sure I understand brain fog. Maybe I don't have it? Maybe it was so long ago I don't remember? Maybe I jumped straight to the encephalitis-type deficits? This is so very basic, I know, but can you better describe brain fog?

    Is it the feeling that visual and auditory information is jumbled and my brain can't keep up - like being on a merry-go-round (carousel) when you can't quite pin down objects in the distance because they move by too quickly?
  2. amaru7

    amaru7 Senior Member

    I did testing, folate was low, B12 just fine. I used to take them both before though and it never improved my dementia like symptoms actually.
    As for COMT, yes it's the only one. I also have nat, sod, gst done but no other methylation SNPs

    I'm convinced that my issue comes from malfunctioning mitochondria. It is important for the energy production for all cells including the brain (it uses 20% of all energy, relatively high compared to its size of 3%)
    Little Bluestem likes this.
  3. Cheesus

    Cheesus Senior Member

    I'm curious, would Gingko Bilbao mitigate hypo-perfusion?

    And sorry, Amaru, I have had some weird, horrible symptoms, but, apart from when my brain hits a brick wall of fatigue, cognitive difficulties aren't one of them. Having said that, I can't read a book because it is too energy intensive.
  4. Martial

    Martial Senior Member

    Ventura, CA
    Yes absolutely it is commonly used for perfusion of the brain! I use it three times a day. Also something else that helps a lot are certain enzymes like Bromolein, Nattokinase, Serrapeptase, Papain, Trypsin, and Chymotrypsin. I think CoQ10 is also supposed to help. I actually buy a formula blend that contains all the enzymes called inflamezyme by Biogenesis pharm, then take the CoQ10, and Gingko Billbao like mentioned before. It helped a lot but I also experienced head aches from taking all of it together, or maybe from another supplement near the same time. Trying to figure that one out but figured it could be related to gaining better blood flow again, or possibly a side effect of the Gingko.
  5. justy

    justy Donate Advocate Demonstrate

    I couldn't take Gingko - wired feeling yet again! Interesting @Martial that you mention chymotrypsin - my genova CDSA showed low chymotrypsin levels - I asked my ME doc at the time if I should supplement directly with it and she said no need.

    Ha! even though I have the brain ability to study and wrote essays for my degree course (it's a painful process) I couldn't remember what thread I was just writing on, or why I was even responding - had to scroll back to the top to see the thread title, and even then couldn't remember why I was here.

    Those are the sort of issues I am now having trouble with - used to be word retrieval was a big problem, and also could think the word, but a different word would come out of my mouth, or just wouldn't be able to say it. Luckily always been able to read and watch TV - thank god!

    But now I seem to have a nasty blankness in my brain pretty much all the time. I can concentrate on study for about an hour, but after that my brain is shot. Today I am in a crash - npo idea what from and I keep forgetting why I am having certain conversations. Also have acquired dyslexia now and typing is slower than normal - brain cant keep up.

    I always used to have incessant brain chatter - in fact when I was younger it was too much, but these days it is blank. My hiusband sometimes asks what am I thinking about and mostly there is nothing going on in there - he always seems surprised at this - literally a big blank hole.

    sorry garbled talk...
    amaru7 and Wayne like this.

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