charles shepherd
Senior Member
- Messages
- 2,239
I have been working away for three days - so am only just catching up with DT events!
Firstly, many thanks for all the kind comments about my article - which is a follow up to the formal complaint that was made by the MEA to the Daily Telegraph in relation to their coverage of the latest analysis of the PACE trial results.
Secondly, I understand that the Independent Press Standards Organisation (IPSO) will be making a public statement later in the week - or next week - on the various strands to our complaint.
Thirdly, people are quite rightly pointing out that the symptom list that accompanies the article should have included post-exertional malaise and orthostatic intolerance.
Unfortunately, the DT did not used the symptom list I provided, as included below - which does include post exertional malaise and orthostatic intolerance!
Fourthly, there was a lot more that I wanted to say in an article that is aimed at informing the general DT readership about ME/CFS. However, I had a maximum word count of 750 words. I managed to extend this to 850 words - but that is as far as I could go.
Fifthly, the MEA letter to Lancet Psychiatry on the PACE trial analysis has now been accepted for publication.
This is the 'Key Facts' box was sent to accompany the article:
ME/CFS: KEY FACTS
Affects around 250,000 adults, adolescents and children of all social classes in the UK
Commonest cause of long term sickness absence from school
Often follows a viral infection and produces:
Diagnosis has to be made on the clinical history - there is no test for ME/CFS
Firstly, many thanks for all the kind comments about my article - which is a follow up to the formal complaint that was made by the MEA to the Daily Telegraph in relation to their coverage of the latest analysis of the PACE trial results.
Secondly, I understand that the Independent Press Standards Organisation (IPSO) will be making a public statement later in the week - or next week - on the various strands to our complaint.
Thirdly, people are quite rightly pointing out that the symptom list that accompanies the article should have included post-exertional malaise and orthostatic intolerance.
Unfortunately, the DT did not used the symptom list I provided, as included below - which does include post exertional malaise and orthostatic intolerance!
Fourthly, there was a lot more that I wanted to say in an article that is aimed at informing the general DT readership about ME/CFS. However, I had a maximum word count of 750 words. I managed to extend this to 850 words - but that is as far as I could go.
Fifthly, the MEA letter to Lancet Psychiatry on the PACE trial analysis has now been accepted for publication.
This is the 'Key Facts' box was sent to accompany the article:
ME/CFS: KEY FACTS
Affects around 250,000 adults, adolescents and children of all social classes in the UK
Commonest cause of long term sickness absence from school
Often follows a viral infection and produces:
- Exercise-induced muscle fatigue and weakness
- Cognitive dysfunction - problems with memory, concentration, attention span
- On-going flu-like symptoms with sore throats, tender glands and poor temperature control
- Orthostatic intolerance - problems with maintaining upright posture - and poor balance control
- Unrefreshing sleep
- Post-exertional malaise and symptom exacerbation following exercise
- Fluctuating and variable level of symptoms
Diagnosis has to be made on the clinical history - there is no test for ME/CFS