Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
Discuss the article on the Forums.

Crash on thyroid meds

Discussion in 'Thyroid Dysfunction' started by tinacarroll27, Nov 8, 2017.

  1. tinacarroll27

    tinacarroll27 Senior Member

    Messages:
    187
    Likes:
    723
    UK
    Hi all! I have been taking Levothyroxine T4 for the last 2 months at 50 microgram tablet a day and didn't notice any difference (I didn't feel worse or better). Then over the last couple of days I have crashed and have become completely bed bound and feel terrible! I thought it was the meds so I stopped taking them for a day but woke up feeling even worse. My TSH was slightly high before I started on T4 at 5.6 so my GP put me on a trial thinking I would feel a lot better on them and it would sort out my fatigue but I don't think she really understands ME as she keeps calling it chronic fatigue and seems to not really know much about it. Not sure if it is the T4 meds or just the ME acting up that has made me crash. Was managing really well before this:ill::ill::ill::ill:
     
    soxfan likes this.
  2. soxfan

    soxfan Senior Member

    Messages:
    963
    Likes:
    572
    North Carolina
    I am in the same predicament...I had been taking Levothyroxine for about 12 years and recently switched to NP Thyroid. Within a week I was waking up exhausted and fatigued. I stayed on NP for six weeks as the doctor said it takes that long for your body to respond to the hormone. I was certain this new fatigue was from that but I quit it a couple days ago and went back to Levothyroxine and am still feeling awful.
     
  3. Judee

    Judee Senior Member

    Messages:
    136
    Likes:
    284
    Wisconsin
    I like what this website says about us going too strong on the thyroids.

    http://www.chronicfatiguediagnosis.com/2018/05/31/1418/

    I like what she says, "By using the above approach, Blanchard was able to restore back to health many patients who have previously failed both on conventional protocol or who have been made much worse by the alternative protocols." because neither worked well for me and now I take just a half of 75mcg pill of T4 which is all I can handle.

    I'm going to get a copy of Dr Blanchard's book. It sounds like his approach to all this is gentler which I think is called for in ME/CFS because I think our systems are overly sensitive to anything stimulating and we crash.
     
    Last edited: Jun 5, 2018
  4. Nanni

    Nanni

    Messages:
    63
    Likes:
    57
    I found the thyroid medication problem is extremely difficult. The manufacturer matters and other supplements you take. The t3 t4 ratio can be tricky. I’m finding it imperative to balance all my hormones in general. I’ve taken an Armour type medication for 25 years and have always struggled with getting stable. I’ve taken as much as 2.75 grains and have still felt bad. I was a little better during menopause with replacement hormones added. i needed only 1.25 grains then but I wasn’t taking testosterone. Since my new doctor recently added testosterone to the mix I’m suddenly hyper thyroid. I’m better now but last few months the anxiety was exhausting and I was definitely more fatigued. In dealing with this I’ve learned Hyperthyroidism can feel like cfs/me. I know that I haven’t been technically hyper thyroid before now. It’s just an awful feeling of anxiety for me so to much or too little medication has not been my problem. It’s the big picture, getting the whole hormonal balance. I have more energy now and I’m taking less thyroid medication. Go figure.
     

See more popular forum discussions.

Share This Page