August 8th, 2018: Understanding and Remembrance Day for Severe ME
Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the 25% of those with ME/CFS who are most severely ill.
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Congress writes back!

Discussion in 'Petitions' started by Stretched, Jul 18, 2018.

  1. Stretched

    Stretched Senior Member

    U.S., Southeast
    I was surprised to receive this congesswoman’s reply to my simple signing of a petition put together by ?
    ‘Seems there’s some good information floating around Congress, at least from Atlanta, Georgia. I wonder how ubiquitous it is?

    <<Thank you for contacting me regarding Myalgic Encephalopathy/ Chronic Fatigue Syndrome (ME/CFS). I appreciate you sharing your thoughts on this issue.

    ME/CFS is a serious disease that is estimated to affect more than 1 million Americans. The National Institute of Health (NIH) has taken an active role to learn more about this debilitating disease. In 1999, the NIH established the Trans-NIH ME/CFS Working Group to foster ME/CFS research. Today, thanks to millions in research grants, we are gaining a better understanding of the disease and important treatment options have been identified. The funds that support this important research are in place through 2022.

    Additionally, in the recent Fiscal Year 2018 Budget passed by Congress, funding allocated to the NIH increased by $3 billion to a total of $37 billion. I am hopeful that this increase in funding will allow for greater progress in the field of ME/CFS research.

    Again, I appreciate you taking the time to share your thoughts and concerns with me.

    Karen C. HandelMember of Congress

    P.S. Please visit my website at to sign up for my weekly newsletter to stay up to date on Congressional and district happenings, or follow me on Facebook at and on Twitter at @RepKHandel. >>
    Last edited: Jul 18, 2018
    Cath, AlwaysTired, Jackb23 and 7 others like this.

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