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% chance children of CFS parents get CFS

Discussion in 'General ME/CFS Discussion' started by nina_online, May 4, 2016.

  1. nina_online


    Austin, TX
    One of our members said in another thread that

    taniaaust1, do you remember where you saw this or who the doc was?

    Can anyone else point me in the direction of information regarding how likely our children are to get CFS? (My sister has it, too, so I'm inclined to believe it runs in families.)

    Last edited: May 4, 2016
  2. NL93

    NL93 Senior Member

    The Netherlands
    I don't know, i am the only one in my family with ME.
    But i wonder, does it matter if the mother already had ME when pregnant, or if she fell ill later. It wouldn't surprise me if the first scenario has a higher risk of the child getting ill too.
    Justin30, Mrs Sowester and Mel9 like this.
  3. ahmo

    ahmo Senior Member

    Northcoast NSW, Australia
    panckage likes this.
  4. PennyIA

    PennyIA Senior Member

    I'm pretty sure my 12 year old son has it, and also pretty sure I got it 11 years ago. My 28 year old son does not have it nor do either of his sons. However, we all ALSO have Methylation issues. While I'm not convinced Methylation issues are in any way a root cause of ME/CFS? I'm wondering if they, like environmental factors or Mold exposure, etc... are stresses on the system might weaken the system and make you more prone to it.
  5. Research 1st

    Research 1st Severe ME, POTS & MCAS.

    I really feel for the moms here.

    In the UK, women who develop CFS during a pregnany are banned from donating the umbilical cord. This is a sensible precaution, but one rarely advertise as it doesn't fit in with the mind-body theory of what 'maintains' CFS symptoms after the infection has 'gone'. (E.g the patients mind said to be defective and in need of CBT/GET).

    Not only is this ban on umbilical cord material of CFS mothers a masked admission the mother is presumed infected, it also (by default) means the newborn is presumed infected also. (Closing the barn door after the horse had bolted).

    I imagine the truth, is rather more complicated, but this does't stop women being victims of people wth an agenda.

    From the few women I've spoken to who have CFS and children with ME CFS or autism many report a miscarriage. This is interesting medically (aside from tragic) because inflammatory processes can leads to instability in the placenta and not uncommonly this can be due to Borrelia infection. I took that on board back then, as now, an increasing percentage of people with a diagnosis of ME or CFS, and finding out decades later that not only they have Lyme (the patients) but the moms and even dads have Lyme too, including healthy family members never bitten by a tick.

    Over the next few years I think this is going to get quite heated, if a ground breaking diagnostic test can be developed that is not only accurate, but is cost effective and can look for multiple strains at a time (lab on a chip perhaps).

    Perhaps then, we will discover and be able to have more answers of parent to child transmission of 'CFS'. As someone who's mom has CFS and now the dad is sick too, I want answers and I also want answers for women too, who I fear, have be sold down the river as usual for the purpose of not telling the public until a treatment has been created. (If one ever exists).

    I want to see what the Nevada Centre for Biologial Research (new name for Whittemore Peterson Instiute) finds, now they are going to start looking for links between MS, Autism, FMS, and CFS, rather than research CFS in isolation. It would seem a future discovery of a shared pathogen, or shared autoimmunity is more than possible (with differing disease expression) and if so, I would not be surprised to learn the common denominator is Borrelia affecting whole families who carry certain genes, and in these people the infection is not only passed on the children, but is pathogenic (disease causing).

    As someone who's own life has been ruined and will never be able to have children myself, I want answers and I want them urgently.

    If 'CFS' subsets are found to be linked to a sexually transmitted pathogen (in genetically susceptible people), I would imagine many will be asking questions, why the British banned blood/umbilical cord/bone marrow as a precaution, but America didn't.
  6. barbc56

    barbc56 Senior Member

    Do the British ban umbilical cord donation to anyone who's sick? Like they do for Blood donars.
  7. PennyIA

    PennyIA Senior Member

    Very interesting. Again, methylation might be a risk factor or could be totally unrelated. However, MTHFR defects tend to also be a risk factor for miscarriages - from both Father & Mother side. For my own experience, I've had two miscarriages - one each before each of my sons were born.
  8. 2kidswithME


    Oxfordshire, England
    Two of my children have had ME, but I haven't. Nor did my other child get it, although he had spells of being unwell through his teens, particularly if he got over tired. There's known to be a genetic predisposition, carried in the RNA I think it is. When my son fell ill I then realised that my mother sister and niece had all had variations on the theme. So ther is a strong family element for us.

    Edit: Dr Bell is clear there is a strong family link, but I don't have a source handy.
  9. Valentijn

    Valentijn Senior Member

    Probably unrelated. The rates of SNPs which have a significant impact on the methylation cycle are the same in ME patients and the general population. I also looked at the additive effect of multiple SNPs in 31 ME patients versus 31 ethnically matched controls who I have 23andMe data for, and there was no difference between the two groups.
    Eeyore and zzz like this.

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