Lyme disease bill to be challenged by infectious disease experts in Senate
http://www.cbc.ca/news/politics/lym...nfectious-disease-experts-in-senate-1.2858622
An organization representing Canada's infectious diseases specialists plans to raise objections to a private member's bill on Lyme disease at Senate committee hearing today.
Their concern: The bill appears to support the notion that significant numbers of people in Canada are suffering from a condition they believe to be chronic Lyme disease and that these individuals are being failed by a medical system that refuses to accept that diagnosis.
Further, the preamble of the bill suggests Canadian medical guidance on how to spot Lyme disease relies on U.S. guidelines it terms "so restrictive" that they severely limit the diagnosis, leaving sick people to suffer.
The organization, the Association of Medical Microbiology and Infectious Diseases Canada or AMMI Canada, is hoping to persuade the committee to strip three paragraphs from the preamble to the bill, saying it can support the rest of the document.
But Green Party Leader Elizabeth May, who proposed the bill, says that isn't possible at this stage.
Amendments would effectively kill bill: May
May, an MP for the British Columbia riding of Saanich-Gulf Islands, says the preamble cannot be altered without sending the bill back to the House of Commons.
And that, she says, would effectively kill the bill; there would not be enough time for it to make its way back through Parliament before next fall's election.
May doesn't see the problem, however, insisting the preamble does not take sides on the very thorny issue of whether chronic Lyme disease exists.
"This is an attempt on my part to be completely non-partisan and also not to take sides on the heated debate about whether there's such a thing as chronic Lyme or whether there's post-Lyme syndrome," she said in an interview.
"I'm not a doctor. I'm not taking positions on these things."
But infectious diseases specialists feel May has done just that by framing the bill with wording that questions the current diagnostic guidelines and quotes a B.C. government report supportive of the views of the vocal Lyme lobby.
Bill 'gives a false state of the science'
Their fear is that in criticizing the existing guidelines, developed over the course of several years by the
Infectious Diseases Society of America, the bill is tacitly supporting another approach to diagnosing and treating Lyme disease, developed by the International Lyme and Associated Diseases Society.
An independent review of those guidelines, commissioned by Britain's Health Protection Agency — now Public Health England — concluded they did not provide "a scientifically sound, evidence-based approach to the diagnosis and care" of patients with Lyme disease.
"It sets a tone and it gives what I think is a false state of the science around testing and clinical treatment of Lyme disease," Dr. Bonnie Henry, B.C.'s deputy chief medical officer, says of the preamble to May's bill.
Dr. William Bowie, who teaches infectious disease medicine at the University of British Columbia, will represent AMMI Canada at the Senate hearing.
Bowie, who has been involved in drafting the Lyme disease guidelines drawn up by the Infectious Diseases Society of America, feels the preamble dismisses the whole evidence-based process used to arrive at this type of guidance for medical practitioners.
Proposal garnered cross-party support in Commons
"We have the funny situation of this person who fights for climate change and believes in science ... who here is totally missing the point," Bowie says.
"She's arguing on behalf of an anti-science lobby, which seems to me to be incredibly ironic."
May disagrees.
But she admits she had anticipated encountering push-back to the bill's preamble — though not for the sections that have raised AMMI Canada's ire.
The preamble refers to the fact that climate change is predicted to expand the range of the habitat of the ticks that carry Borrelia burgdorferi, the spirochete that causes Lyme disease.
May expected to have to fight to hold onto that reference to global warming.
But C-442 has garnered support from all sides of the political spectrum. It is expected to pass, which is rare for a private members' bill.
It calls on the government to convene a conference of provincial and territorial ministers plus stakeholders — medical experts and patient groups — to develop a comprehensive Lyme disease strategy.
The strategy would include a national surveillance program to track rates of infections, establish guidelines for preventing infections, diagnosing when they occur and treating them according to "current best practices."
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