SilverbladeTE
Senior Member
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- Somewhere near Glasgow, Scotland
not sure where best to put this post, but here goes
been several threads recently on TVC programs, articles etc claiming some folk can "cure ME" by "retraining the brain/person" etc
now, as I've said often, I believe ME is helped by reducing stress of any form
so, coping psychology etc can help, but it damn sure cannot cure ME, since it's organic, not some weird reaction to psychology!
The organically proven effects shown in many studies, including deaths, simply do not mesh with any claims of such people
Stressors (exercise, infection, injury, dealing with people, just thinking hard) exacerbate ME and can form some nasty cycle that can spiral worsewards.
Now, in times past, and even to this day in parts of Africa, quacks and "witchdoctors" would tell folk with syphillis that their "cures" would work
Now, here's the thing, the patient would seem to get better
The reality was though, either the body defeated (or held down) the infection, or it changed into a different phase, where it attacked the brain/CNS/heart very slowly
So people thought the quacks and witchdoctor's cures were working, when in fact, it was just the natural course of the disease!
With the social stigma, cultural ignorance etc of the disease, little research/help etc was available or patient refused to find such, thus aiding and abetting the quacks and witchdoctors
With ME, most folk after a few years tend to slowly improve up to a certain point
I personally believe this is because the person learns to pace themselves and deal with more of the psychological trauma of being so disabled (and yes it is a trauma 'cause it's so damn distressing)
Thus I would suggest that many of these "talking cures" are no such thing, merely falling in line with the natural course of how most victims respond ot the disease, and perhaps helping by reducing stress.
Note that merely having someone LISTEN, and give comfort is of great benefit to most patients in any situation.
Some of these people will of course genuinely believe they are helping patients and as said, may indeed help, but not as they think they are, as their theories are simply hogwash for the most part.
if genuine, put them to the scientific test or SHUT UP.
But they better accept the responsibility of their actions if they are wrong
personally I find it a bloody obscenity that this disease has been so stygmatized, so deliberately thrown into the wastebin of medicine, that such practices are allowed to occur without challenge, or, worse, without patients having no tested and proven TREATMENTS, it's no gawd damn wonder they go try any damn tomfoolery, fraud or potential "life line" (good or bad), to rescue themselves from the pit of despair.
it has been reduced to the "witchdoctor treatment" FFS!
If this kind of crap went on about Multiple Sclerosis or other once maltreated diseases which are now proven, those involved would get in very serious trouble (and I mean that in a very broad spectrum of blame)
People have every right to believe whatever they wish, and try any treatment they wish, it is as always, their lives and minds, and "alternative" haelers and such can indeed help (some are genuine, some are frauds though but there's no easy way to tell, no tests/regulations etc).
But reducing medicine and patients ot such desperation/lack of proven treatment to such an extent there is NOTHING in conventional medicine in most countries for them, by conceit, psychobabble and worse, is gawd damn bloody monstrous!
been several threads recently on TVC programs, articles etc claiming some folk can "cure ME" by "retraining the brain/person" etc
now, as I've said often, I believe ME is helped by reducing stress of any form
so, coping psychology etc can help, but it damn sure cannot cure ME, since it's organic, not some weird reaction to psychology!
The organically proven effects shown in many studies, including deaths, simply do not mesh with any claims of such people
Stressors (exercise, infection, injury, dealing with people, just thinking hard) exacerbate ME and can form some nasty cycle that can spiral worsewards.
Now, in times past, and even to this day in parts of Africa, quacks and "witchdoctors" would tell folk with syphillis that their "cures" would work
Now, here's the thing, the patient would seem to get better
The reality was though, either the body defeated (or held down) the infection, or it changed into a different phase, where it attacked the brain/CNS/heart very slowly
So people thought the quacks and witchdoctor's cures were working, when in fact, it was just the natural course of the disease!
With the social stigma, cultural ignorance etc of the disease, little research/help etc was available or patient refused to find such, thus aiding and abetting the quacks and witchdoctors
With ME, most folk after a few years tend to slowly improve up to a certain point
I personally believe this is because the person learns to pace themselves and deal with more of the psychological trauma of being so disabled (and yes it is a trauma 'cause it's so damn distressing)
Thus I would suggest that many of these "talking cures" are no such thing, merely falling in line with the natural course of how most victims respond ot the disease, and perhaps helping by reducing stress.
Note that merely having someone LISTEN, and give comfort is of great benefit to most patients in any situation.
Some of these people will of course genuinely believe they are helping patients and as said, may indeed help, but not as they think they are, as their theories are simply hogwash for the most part.
if genuine, put them to the scientific test or SHUT UP.
But they better accept the responsibility of their actions if they are wrong
personally I find it a bloody obscenity that this disease has been so stygmatized, so deliberately thrown into the wastebin of medicine, that such practices are allowed to occur without challenge, or, worse, without patients having no tested and proven TREATMENTS, it's no gawd damn wonder they go try any damn tomfoolery, fraud or potential "life line" (good or bad), to rescue themselves from the pit of despair.
it has been reduced to the "witchdoctor treatment" FFS!
If this kind of crap went on about Multiple Sclerosis or other once maltreated diseases which are now proven, those involved would get in very serious trouble (and I mean that in a very broad spectrum of blame)
People have every right to believe whatever they wish, and try any treatment they wish, it is as always, their lives and minds, and "alternative" haelers and such can indeed help (some are genuine, some are frauds though but there's no easy way to tell, no tests/regulations etc).
But reducing medicine and patients ot such desperation/lack of proven treatment to such an extent there is NOTHING in conventional medicine in most countries for them, by conceit, psychobabble and worse, is gawd damn bloody monstrous!