Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Blog: Improving care for people with Medically Unexplained Symptoms

Discussion in 'General ME/CFS News' started by AndyPR, Mar 27, 2017.

  1. AndyPR

    AndyPR Senior Member

    Not a recommendation.
    http://primarycarekeele.blogspot.co.uk/2017/02/mus-guidelines.html

    Comments are open, only one comment so far but a very good one.
     
    Chezboo, GreyOwl, Chrisb and 8 others like this.
  2. slysaint

    slysaint Senior Member

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  3. lilpink

    lilpink Senior Member

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    Yes the solitary comment is good. I tried to add another but it didn't make it through moderation. We need to keep this in the front of our minds... the way in which MUPS is being rolled out and the derogatory comments used to enthuse members of the medical profession and service providers alike is very worrying.

    I won't add more to this thread as I appreciate it's already covered at my post elsewhere, but this isn't going away.
     
  4. Cheshire

    Cheshire Senior Member

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    A podcast in the same vein (GP sceptics, what a joke....):
    https://drjustincoleman.com/2017/08/10/gpsceptics-pod11-medically-unexplained-symptoms/

    Presentation:
     
    Last edited: Aug 10, 2017
    Invisible Woman and AndyPR like this.
  5. Chrisb

    Chrisb Senior Member

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    They have given the game away:

    "As a GP what can I do?

    ..........I led the development of a number of fact sheets which aim to support GPs in their daily encounters with people with mental health problems. One of these fact sheets focuses on MUS, which makes valuable suggestions to support you, as a GP, in the identification and management of patients suffering with MUS."

    Clearly you only need read the fact sheet if you have a patient with a mental health problem.

    The fact sheet in the "Mental Health Toolkit" for "Medically unexplained Symptoms guidance" is introduced by the statement "The following tools may be used for recognising, diagnosing and helping patients with a mental illness".

    I find it hard to decide whether there is a general lack of competence, or whether it is merely an absence of the skills necessary for drafting complex documents.
     
  6. Cheshire

    Cheshire Senior Member

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    Yeah, relying on your prejudice really is the best management of all. :bang-head:
    That could have perfectly happened with ER doctors
    http://www.telegraph.co.uk/news/201...oms-attention-inquest/?WT.mc_id=tmgoff_fb_tmg
     
  7. lilpink

    lilpink Senior Member

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    Esther12 and Sean like this.
  8. lilpink

    lilpink Senior Member

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    Just to draw people’s attention to the radio programme - https://www.talkradioeurope.com/on-demand/ that aired on Wednesday 23rd May – in the 20.00 to 21.00 and 21.00 and 22.00 slots (8pm to 10pm) where there is an excellent discussion about the harms that drugs can cause, especially antidepressants (in particular SSRIs) and benzodiazepines.

    In the first hour there is a long interview with David Healy, ending with a clip from a patient who is calling for a public inquiry, and in the second hour we hear from several patients who have suffered and from Marion Brown who is a psychotherapist and the petitioner for this petition to the Scottish Parliament that aims to highlight the harms caused by prescribed drug dependence and withdrawal.- http://www.parliament.scot/GettingInvolved/Petitions/PE01651 . NB If you have been harmed by drugs it is apparently possible for any individual from anywhere (you don’t have to live in Scotland but it mustn’t be from an organization) to add to this petition by emailing petitions@parliament.scot quoting - PEO1651 – in the subject heading.


    One of the points raised in the radio programme is that patients suffering from drug side-effects and withdrawal effects are likely to be told that they have MUS or ‘medically unexplained symptoms’ and are then regarded as being mentally ill. They are one group of many groups of patients who are suffering as a result of the MUS label that is being imposed on them. Wouldn’t it be good if all of these groups, ME included, could join together and support each other to help overturn this MUS model?
     
    Lisa108 likes this.
  9. lilpink

    lilpink Senior Member

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    Following on from #8, the excellent radio discussion about the harms that drugs can cause, (especially antidepressants and benzodiazepines ), can also be accessed via this link - http://www.jfmoore.co.uk/tre.html

    In relation to petitions, in addition to the Scottish petition there was also a Welsh petition that took some 'patient experience' evidence. Here is a link to the full 'Meetings' information about this petition - http://www.senedd.assembly.wales/ieIssueDetails.aspx?IId=19952&Opt=3 which includes that evidence and may be of particular interest to people living in Wales who have had problems with drugs that they've been given
     
    Lisa108 likes this.

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