Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by muffin, Jan 12, 2011.

  1. muffin

    muffin Senior Member


    Andrea Pring has come up with a brilliant idea. From Andie's blog above:

    XMRV Bloggerama Day

    "Tired of reading all those regurgitated pieces based on the Wellcome Trust press release? Wonder where all the good journalists have gone? Want to put the record straight? Well, it's time for us to hit the feeds on mass and refute those refuters. Join us on Friday 21st January for a day of digital address. Write one piece, two, three or even more. Write on the hour if you want but let's give Google what it's crying out for -- the truth, the whole truth and nothing but the truth. The theme, of course, will be XMRV.

    If you haven't got a blog and want to join the blogger army, then pop along to or and sign up for a free blog account. If you need help, please ask and I'll be happy to assist.

    Over the next few days I will be adding some links to the event page that I think you need to be aware of before writing your 'news report'.

    If you want to gain a wider perspective, please feel free to visit the XMRV News & Views page which is updated several times a day by a great team of digital sleuths.

    Good luck!
  2. LJS

    LJS Insert Witty Comment Here

    East Coast, USA
    I mean no disrespect for what you are trying to do but I feel it would be better if we put our energy to getting major media outlets to do more CFS stories with patients prospective or correct major media outlets when they get it wrong. The thing about blog posts is they have to be activity searching for to be found or someone has to send you a link to them and they have to be an established blog for most to take the content seriously.

    Most people who do not have CFS or do not know someone with CFS have learned about it from a major media outlet or from a trusted source. So it is important to correct major media outlets and get them to run balanced articles on it.

    Those that are actively searching the web for information about CFS are generally those who already have CFS or know someone with CFS and will turn to an already established source such a media outlets, patient forums, and established blogs. I do not feel people will pay attention to a blog with one or two posts about CFS or XMRV.

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