Discussion in 'Latest ME/CFS Research' started by Countrygirl, Jul 4, 2018.
Are ME/CFS Patient Organizations “Militant”?
The nature of ME/CFS is also minimized de facto by the treatment prescribed in the NICE guidelines. So it's double hit...for UK patients as they are 1) viewed as militant, and 2) believed to have a "treatable" illness by addressing hysteria. In the US, we definitely benefit from the IOM report, but many doctors remain uneducated. More leadership by the CDC in actively educating about ME/CFS could reduce this further.
The one advantage in the UK, is that the educational and top-down institutional model within the NHS, can lead to a much more rapid change in perspective across the board if the message through NICE is changed to reflect a biomedical approach. In the US, even if the CDC changed it's tune, we have a diffuse way of spreading information that is dependent on medical schools and individual health organizations incorporating the medical model into their approach.
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